ME/CFS is an extremely difficult condition to understand, describe and certainly live with. There is currently no cure, no recommended treatment, no 'across the board' NHS management. People living with it self manage and are desperate to feel better 

Its like having bad flu, everyday, with a hangover, after a day of dance rehearsals the day before, yet you are not able to feel better. Patients get cognative problems, are in muscle pain most days, cardiac issues, sensitivities, anxiety, migranes....the list goes on

There are hundreds of thousands of people and their famillies affected my ME/CFS/Fibromyalgia in the UK alone....Its time we did something, and this event is 'fully' inclusive as even severely affected people can take part. Please help me do something good, help me make some change, six years ago I was diagnosed, i would like to be able to run - thank you from the bottom of my heart xxx