My story

Thanks for taking the time to visit my JustGiving page.

 

I was diagnosed with MG when I was 14 and have had varying symptoms, relapses & various treatments for 12 years now; including major surgery at the beginning to remove my thymus gland & now daily doses of different drug treatments to keep the symptoms at bay. It’s a really frustrating condition – and even if I get the slightest infection it can upset the delicate balance and set off the MG which means that there are times for instance when maybe I can’t smile properly or perhaps raise my arms above my head to wash my hair or move my legs enough to climb the stairs – simply because those muscles won’t work. The scariest time for me was when my breathing muscles collapsed and I ended up in ITU on a ventilator for 10 days, but that didn't hold me down for too long! 


I have been lucky enough to be in the care of an amazing neurologist based in Oxford under the NHS since I was 14 and I still find it difficult to explain what MG is..so bare with me while i do.

 

Myasthenia gravis (MG) is a chronic, autoimmune disease that causes muscle weakness and excessive muscle fatigue. It is uncommon, affecting about 15 in every 100,000 individuals in the UK. The disease can vary in severity and distribution of weakness between individuals, and in any one patient the symptoms fluctuate with relapses and remissions. Myasthenia gravis can resolve spontaneously, but for most patients myasthenia gravis persists for life.  It can be life threatening, but 90% of patients become symptom-free with modern treatments.

 

It doesn’t have a high profile & as far as I am aware nobody famous has it. But that doesn’t mean that the charity doesn’t need your support; to find the causes, better and alternative treatments & always with the hope of eradicating it altogether.

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

 

My updates 14

Hurting so much today but well worth it - thanks to all who have supported it means so much. If you still want to sponsor us, you can do up until the 6th June! Thank you all!! x

07/05/12 09:50

We did it!!!!!!!

06/05/12 18:18

Eeeeeeeeeeeeeek 1 more sleep!!!

04/05/12 09:18

2 sleeps..............!!!

03/05/12 09:50

I just can't quite get my head round all the support,i am a bit soppy but i have to say it makes me well up just thinking about it as it means so much to me...so thankyou everyone from the bottom of my heart x

02/05/12 20:32

My charity

Myasthenia Gravis Association

Myasthenia Gravis Association

Charity Registration No. 1046443

Myasthenia Gravis is an auto-immune disease which is characterised by fluctuating and sometimes fatal, muscle weakness. It affects all ages and both genders. The charity aims to aid the discovery of improved diagnostic techniques and better treatment - ultimately to find a permanent cure for Myasthenia Gravis and similar disorders of the nerve-muscle junction.

Donations 79

Donation by Tom Lowe on 06/06/12

£5.00

+ £1.25 Gift Aid

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Donation by Andrew Prosper on 25/05/12

£5.00

+ £1.25 Gift Aid

Donation by Holly Jeffrey on 19/05/12

£10.00

+ £2.50 Gift Aid

Donation by Susan Whitaker on 07/05/12

£10.00

+ £2.50 Gift Aid

Donation by ZAF ALI on 07/05/12

£300.00

+ £75.00 Gift Aid

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Well done, tip top. Hope it was fun too. Greg, Kathryn, Andy, Sam & Tessa. XXXX

Donation by Greg Lowe on 07/05/12

£50.00

+ £12.50 Gift Aid

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You are an inspiration Luce. So proud to know such an amazing lady. Well done you. Love Bec and Lee x X x

Donation by Rebecca Hughes on 06/05/12

£20.00

+ £5.00 Gift Aid

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well done ruth and others good luck hope all goes well. love Zoe Tim Will Holly.

Donation by tim bradburn on 06/05/12

£20.00

+ £5.00 Gift Aid

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Soo nearly forgot to sponsor you! hope all is going well...and look forward to the photos!! x

Donation by f jane robinson on 05/05/12

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Best of luck! From a friend of Glynn & Brians

Donation by Liz Penney on 05/05/12

£10.00

+ £2.50 Gift Aid

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Good luck girls! x

Donation by Matt Mernor on 05/05/12

£30.00

+ £7.50 Gift Aid

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Good luck Biffa lovely ladies. Have a great day and well done. Much love from Terry & The All Clear Company

Donation by The All Clear Company on 05/05/12

£50.00

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Good Luck xx

Donation by Jenny Duckworth on 04/05/12

£10.00

+ £2.50 Gift Aid

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Lucy you are amazing, good luck tomorrow. You've got some great support from some awesome girlies. Best of luck tomorrow!!! xx

Donation by Natalie Blount on 04/05/12

£25.00

+ £6.25 Gift Aid

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Have fun, Becks!

Donation by Ian Saxton on 04/05/12

£10.00

+ £2.50 Gift Aid

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Ruth Well done with the training. Keep going and enjoy the weekend Love mum and dad

Donation by phil and rosemary thomas on 04/05/12

£25.00

+ £6.25 Gift Aid

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Good luck girls, remember powerade and ice baths!

Donation by Jon 'Awesome' Hammond on 04/05/12

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 04/05/12

£5.00

+ £1.25 Gift Aid

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Good Luck Lucy. Hope the weathers holds out for you.

Donation by Adam Bowd on 03/05/12

£10.00

+ £2.50 Gift Aid

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You are amazing Lucy good luck cant wait to hear all about it xxxxx

Donation by Emily Hughes on 02/05/12

£20.00

+ £5.00 Gift Aid

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best of luck Lucy, take it slow & steady ! Get the foot spa ready & the wine!! love Wendy, John & Alix

Donation by john gravett on 02/05/12

£30.00

+ £7.50 Gift Aid

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You can do it! Your a star always in my eyes! i am proud of you always! Think of me chilling out wen ur busting ur arse off! love always milly moo x

Donation by Camilla Pine on 02/05/12

£40.00

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I'm not sure we met in Cyprus, but good luck for the weekend and give my love to mum and dad x

Donation by Susan Hirst on 02/05/12

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 02/05/12

£10.00

+ £2.50 Gift Aid

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Go Lucy go. Good plan to wait for the rain to stop - take suncream, a hat and blister plasters ..just in case. XX

Donation by Jan, Tim, Michael and Jo on 01/05/12

£50.00

+ £12.50 Gift Aid

Donation summary

  • * Online donations£2,045.76
  • Offline donations£150.00
  • Text donations£0.00
  • Total raised£2,195.76
  • Gift Aid£366.25

* Charities pay a small fee for our service. Find out how much it is and what we do for it.