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Luke Harley is raising money for Dystonia UK
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Virgin London Marathon 2011 · 17 April 2011 ·

Dystonia UK is the only UK wide organisation driven to ensure that the 100,000 people across the country with dystonia have access to crucial information support and essential treatment. We exist to give hope and support to those living with Dystonia creating UK and worldwide awareness.

Story

<p><span style="color: #444444;">Thanks for visiting this page. </span></p> <p><span style="color: #444444;">I ran the Brighton Marathon on the 10th April 2011 in 3h48&nbsp;and the London Marathon on the 17th April 2011 in 4h11 ! My legs ached all the way on the London its nothing compared to the muscular pain that sufferers of Dystonia have to live with every day. </span></p> <p><span style="color: #444444;">The charity I'm running for is&nbsp;the Dystonia Society. There is very little known about the condition of Dystonia&nbsp;and you may not have heard about it before. It's often misdiagnosed which&nbsp;hinders correct treatment and care.&nbsp;</span><span style="font-family: Arial; color: #000080;"><span style="font-family: Arial; color: navy;"><span style="color: #444444;">Over </span>70,000 people are&nbsp;currently&nbsp;living with Dystonia in the UK.</span></span></p> <p style="line-height: 13.5pt;"><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">Dystonia causes involuntary uncontrollable muscle cramps and spasms.&nbsp;It forces the body into movements that are painful and completely uncontrollable.&nbsp;</span></span><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">Those affected with Dystonia are affected every day. It is not understood what triggers this condition. </span></span><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">Treatment is sporadic in effectiveness. There is no known cure; or time frames for how long someone will have Dystonia.</span></span></p> <p style="line-height: 13.5pt;"><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">A</span><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">nybody can suddenly become affected whatever age, background, lifestyle.&nbsp;</span></span></span></p> <p style="line-height: 13.5pt;"><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">The Dystonia Society aims to ensure that everyone affected has access to the most appropriate treatment, support and information they need to achieve the best possible quality of life whilst affected with this condition.&nbsp;&nbsp;</span></span></p> <p style="line-height: 13.5pt;"><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">Please give generously whatever you can afford to help.</span></span></p> <p style="line-height: 13.5pt;"><span style="font-family: Arial; color: #444444; font-size: small;"><span style="font-family: Arial; color: #444444; font-size: 12pt;">Please also visit the websites and find out more about this often misdiagnosed condition.</span></span></p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p> <p>Thanks</p> <p>Luke</p> <p>&nbsp;</p>

Donation summary

Total
£750.00
+ £189.07 Gift Aid
Online
£750.00
Offline
£0.00

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