Story
thank you to all who have donated please keep giving. .....
many thanks to all that have donated so far. Please keep giving...
ok under 2 weeks to go please donate to my sons charity. with out the funding the support group can not be sustained. please help
ok 6 weeks to go and I need nearly another £1000 to reach my target please keep donating.
thank you so much for the donations. you all know who you are. xxxxx
thank you so much for all the donations. you all know who you are xxxxxxxxxx
please keep donating. I cant believe that a chap I have not seen for about 23 years is going to run in my team.
£50 needed to take me over the grand keep donating my kegs really are hurting. xxx
the support to my sons charity has been amazing please keep going.
please carry on supporting my sons charity. the RTS families really appreciate all that is being collected.
its been a while since I have asked for some cash so please donate.
team photo just been taken for tge herald express. in this thursday please take a look and donate.
training going well. Still need lots of help please dig deep.
Updated on Jan 23rd 2013 at 7:56 PM from the JustGiving API
please please help me raise my target of £2000 for RTS Support group. it cost around £15000 to put on a conference which the group does every year. but we need funds to carry on supporting families with RTS.
Updated on Jan 16th 2013 at 3:08 PM from the JustGiving API
5th training run tonight. 3 miles gradually geting longer please help and donate.
Updated on Jan 7th 2013 at 11:48 AM from the JustGiving API
training starts tonight first run of the campaign please donate you have no idea how hard this is for me
Updated on Dec 27th 2012 at 10:02 AM from the JustGiving API
now xmas is out of the way dig deep for a charity very close to my heart. I have now entered. no going back x
Updated on Dec 17th 2012 at 9:22 AM from the JustGiving API
please give and help families with RTS x
Updated on Dec 17th 2012 at 8:40 AM from the JustGiving API
well done and thank you to everyone who is donating. without your help families of children with RTS don't get the support needed. keep It coming people who know me will realise what a challenge the half marathon will be xxx
Updated on Dec 14th 2012 at 7:38 AM from the JustGiving API
keep the money coming in. Seth is loving you all.
Updated on Dec 13th 2012 at 12:00 PM from the JustGiving API
please take time to look at my page
Thanks for taking the time to visit my JustGiving page.
On January the 22nd 2011 my wife bex gave birth to a beautiful young man otherwise known as Seth.
He was born with a number of heart defects and was soon rushed up to Bristol Children's Hospital. He was examined and it was discovered that he had a number of small holes and valves that were not closed. They decided not to operate and that this would sort itself out.
A few weeks later I realized that there was something different with the way my son looked and decided to research on the internet. This is when i found out about RTS (Rubinstein Taybi Syndrome).
Bex and I asked our paediatrician if we could have a chromosome test done, and it was then when the results came back we were told he has RTS.
RTS is an extremely rare syndrome and entails some different features and some learning difficulties.
We recently attended a conference and weekend for RTS families enabling us to meet other parents and children with RTS.
This was a fantastic experience for Bex and I, and helped us learn more about our son's condition.
I am putting together a team to run the Torbay Half Marathon in June 2013 and I need people to donate as much money as they can to enable more conferences and support to the families with RTS children.
So please dig deep and donate now.