Thanks for taking the time to visit my JustGiving page. 

Friends and family may be aware that this time last year my father passed away, having fought a painful battle with Dementia with Lewy bodies (DLB), also known as Lewy body disease.

DLB is the second most frequent cause of age-related neurodegenerative dementia. In the UK approximately 100,000 are thought to suffer from  this little known but not uncommon and devastating disease.

My brothers and I will be completing a 10k run along with a good family friend - Nick Cryan - in order to raise funds for this cause which is of very personal significance to us.

We are suggesting, if you are able, to donate £10 for 10k  however any contributions to the fundraising effort would be gratefully appreciated.

DLB shares mental symptoms, such as confusion and loss of memory, with Alzheimer's disease and motor symptoms, such as gait and slow movement, with Parkinson's disease. For that reason it is often misdiagnosed. Accurate diagnosis is essential for successful treatment of the disease: people with DLB are characteristically highly sensitive to certain drugs which can worsen unpleasant symptoms or even be fatal.

The Lewy Body Society was founded in 2006 in order to support research into DLB and to raise awareness and educate the public, the medical profession and those in health-care decision-making positions about the disease. The first LBS funded research began in 2007 with a PhD studentship at Newcastle University.

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now to prevent future misdiagnosis and potentially increase the life chances of many suffering with the disease.