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Mary-Anne climbs Kilimanjaro!

Mary-Anne Murray is raising money for Epilepsy Research Institute UK

Participants: Mary-Anne Murray

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Climb Mount Kilimanjaro · 19 October 2009

The Epilepsy Research Institute’s mission is to radically advance research for the #Onein100 people living with epilepsy. A life free from epilepsy is possible. But only through research We need energetic, adventurous and creative people like you to help us raise vital funds for epilepsy research!

Story

Thanks for taking the time to visit my JustGiving page. On October 19th 2009 I begin my climb up Mount Kilimanjaro! At 5895m or 19,340 feet, it’s the highest mountain in Africa and the tallest free-standing mountain in the world.

I’m doing this climb in memory of my baby cousin Nicholas, who died this year aged only six months. He suffered from Malignant Migrating Partial Seizures/Epilepsy in Infancy. This is a devastating condition – children suffering from it have a life expectancy of only 2/3 years, they show very little developmental progress, and can suffer up to 50 seizures a day. Treatment is ineffectual, seizures become more and more frequent and the child becomes quadriplegic. As an example, one of Nicholas’s seizures lasted 36 hours. 

The charity I'm supporting is Epilepsy Research UK (http://www.epilepsyresearch.org.uk/). This charity researches the causes, treatment and prevention of this terrible condition, which affects over 450,000 people in the UK alone, and something like 50 million people worldwide. I never knew how complex this condition is, or how many variants of it there are. It is not yet understood why some people are born with a disposition towards epilepsy, how a seizure starts in the first place, or what makes them spread. Current treatments are just not sufficient. Medical research is incredibly expensive, which is why this charity’s work is so important.

So please dig deep and donate anything you can to this worthy cause. Thank you.



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Donation summary

Total
£1,234.00
+ £187.56 Gift Aid
Online
£1,117.00
Offline
£117.00

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