My story

On Sunday 29th January 2012, I'll be running 10 miles around Canterbury to raise money for CHARGE.

My daughter Bethany was born with CHARGE association. This is a genetic disorder that can result in a mutlitude of problems including Coloboma (of the eyes), Heart problems, Atresia, Retardation (growth and mental), Genito-urinary and problems with the Ears (abnormal appearance and deafness).

Bethany was born with heart problems (VSD and Ebsteins anomaly) that have required open heart surgery. She was also born with choanal atresia (blockage behind the nose) which has affected her ability to breathe and swallow. Again surgery has been carried out to help rectify this but she still needs to be fed through a tube whilst she gets used to being bottle fed and start swallowing. Her ears are also abnormal and she has definite partial deafness. To add to her problems she also sufers from facial palsy (paralysis) on the left side. Luckily her eyes are fine and she loves looking at peoples faces. She has a great deal of recognition and smiles when she sees her mummy (but not daddy-he's too ugly). She has been in hospital since she was born (November 2011) but she is improving all of the time. We hope to get her home in the near future. Despite all her problems, im sure you'll agree from her picture that she's absolutely beautiful.

There are many children with CHARGE and they display symptoms of varying degree incuding deaf-blindness (no hearing and no sight) which is heart breaking to see.

Whilst there is no cure for such a condition, we can try and raise money to support the families, the children (and adults) who have it and the professionals who work with them.

The 10 mile run is only a week away so i've not given much time to donate prior to the event. However, you can still donate afterwards. This might be better for most as there's no guarantee that i'll get through it alive!

Thanks to you all, Matt.

My charity

CHARGE Family Support Group

CHARGE Family Support Group

Charity Registration No. 1042953

A parent run group providing support and information to families where there are children born with CHARGE Syndrome or to individuals with the condition also to professionals who work with these families or individuals.

Donations 96

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Sorry its taken me so long to donate! Well done and hope every day she gets a wee bit stronger Love Janet

Donation by Janet Rushmer on 06/03/12

£20.00

+ £5.00 Gift Aid

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Glad things are progressing for you '3' Well done for doing this and raising so much See you soon we hope

Donation by Nor & Les Pickstock on 24/02/12

£20.00

+ £5.00 Gift Aid

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Well done, Matt. Love and Best Wishes, Nerys and Don Bailey

Donation by Donald Bailey on 23/02/12

£20.00

+ £5.00 Gift Aid

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Donation by Natalia, Andrew and Noah Dale on 21/02/12

£20.00

+ £5.00 Gift Aid

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Hi Matt Great cause - maybe the marathon next time :) ?? Thinking of all three of you Pete & Ailsa

Donation by Peter Lock on 07/02/12

£50.00

+ £12.50 Gift Aid

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Well done Matt... Bethany will be so proud of her old Dad ;o)

Donation by Ffion and James. xxx on 06/02/12

£15.00

+ £3.75 Gift Aid

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A sterling effort Matthew in every way. Well done.

Donation by Gill Todd on 06/02/12

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Well done Matt on all fronts!

Donation by Penny Charnock on 02/02/12

£20.00

+ £5.00 Gift Aid

Donation by John Hogan on 02/02/12

£100.00

+ £25.00 Gift Aid

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Well done Matt! (and well done for raising so much!!) Love to you all xx

Donation by Ashifa Rashid on 02/02/12

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Well done Matt. Holding you, Hannah & beautiful Bethany in our prayers Much love Maggie & Bill xxx

Donation by William Vennart on 01/02/12

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Well done Matt!! Loads of love to you, Han and Bethany xx

Donation by suzy wilson on 31/01/12

£10.00

+ £2.50 Gift Aid

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Well done Matty. Lovely tights you were wearing! Love to Hannah and Bethany.

Donation by Andrew Prior on 31/01/12

£10.00

+ £2.50 Gift Aid

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Well done Matt!! Jolly good work!

Donation by Kathryn Arthur on 30/01/12

£10.00

+ £2.50 Gift Aid

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Well done Matt! What a great cause! Love to you, Hannah and Bethany! xx

Donation by Sarah Wyllie on 30/01/12

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Well Done Matt.

Donation by Duncan on 30/01/12

£25.00

+ £6.25 Gift Aid

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Well done Matt!

Donation by Martin Catherine and Alexandra Pye on 30/01/12

£20.00

+ £5.00 Gift Aid

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Good luck and all the best.

Donation by Pamela Troup on 30/01/12

£5.00

+ £1.25 Gift Aid

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Nice one Matt. Best wishes...

Donation by Leon Wells on 30/01/12

£10.00

+ £2.50 Gift Aid

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Well done Matt! All the best from Nath and Sam

Donation by Nathan Martin on 30/01/12

£20.00

+ £5.00 Gift Aid

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Well done on the run and raising so much money. Thinking of you all. Carmel and Dave x

Donation by Carmel Horay on 30/01/12

£20.00

+ £5.00 Gift Aid

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Donation by Lindsey and James on 30/01/12

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Congratulations Matt - good effort on the run and an impressive amount of money raised for a great cause. Hope to see you all soon!

Donation by Michael Brown on 30/01/12

£15.00

+ £3.75 Gift Aid

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Hey Matt - How many muscles (fat's) did you pull? Well done from Lucy, Sam, Alice and goon. Thinking of you and your family. Cheers.

Donation by Ben McDermott on 29/01/12

£20.00

+ £5.00 Gift Aid

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Well done Matt. We're proud of all the support you're giving to your girls and to other families.

Donation by Yvonne, Tony, Auntie Jean and friends on 29/01/12

Donation summary

  • * Online donations£2,701.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£2,701.00
  • Gift Aid£649.00

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