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We're running the British 10k London Run on 11th July in aid of the Batten Disease Family Association (BDFA).
Batten Disease (or neuronal ceroid lipofuscinoses) is a group of rare genetic neurodegenerative diseases that occur in children and adults. Those with the disease suffer from a progressive deterioration of the brain and nervous sytem, and suffer an early death in childhood or early adulthood.
Currently there is no cure and little understanding of what causes the disorder. The BDFA aims to provide a support network for sufferers and their families and to increase awareness of the disease. The BDFA also supports research to better understand the disease process, develop better diagnostic tests and potential therapies or treatments.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
