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Miles for Matilda

Susannah Little is raising money for Great Ormond Street Hospital Children's Charity

Team: Remembering Matilda Vere

In memory of Matilda Vere
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SPARKS - Scumrun 2012 · 3 May 2012 ·

Sparks raises money to fund pioneering child health research across the UK, helping to find new treatments and cures for children and families who desperately need them.

Story

<p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">In April 2011, my sister Alex gave birth to a beautiful little girl, Matilda, their second daughter, in Hong Kong (where they live), by C-section.&nbsp; She weighed a healthy 6lb 2oz and other than needing a little oxygen and some time in an incubator, she seemed to be doing very well.&nbsp; Another daughter, niece, granddaughter and of course, a brand new little sister for Isabella.&nbsp; We were absolutely thrilled.&nbsp; </span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">&nbsp;</span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">But, Matilda suffered a massive heart attack with other complicating factors, completely out of the blue, when she was&nbsp;28 hours old and despite having some of the best paediatric doctors in one of the best maternity hospitals in the world,&nbsp;they couldn't save her.&nbsp; A little over a week after she was born, with Alex still recovering&nbsp;from her C-section,&nbsp;they flew home, bringing Matilda with them, and we held&nbsp;her funeral.&nbsp; She was laid to rest&nbsp;in Stonefall Cemetery in Harrogate.&nbsp; Even now, it is impossible to describe the shock, devastation and overwhelming sense of loss.&nbsp;</span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">&nbsp;</span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">The medical term for Matilda's condition is </span><em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: blue; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">pneumo pericardium complicating respiratory distress syndrome of a neonate</span></em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">.&nbsp; There are only&nbsp;about 40 recorded cases of this globally and, to date, it is almost&nbsp;always fatal.&nbsp; </span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">&nbsp;</span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">I learned, as a result of Matilda's death, about </span><em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: purple; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">SPARKS</span></em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;"> <a href="http://exchange.manorcarpets.com/exchweb/bin/redir.asp?URL=http://www.sparks.org.uk/research"><span style="color: blue;">http://www.sparks.org.uk/research</span></a> - the children and babies medical research charity&nbsp;which aims to advance clinical understanding and treatment of conditions affecting babies, children and mums-to-be.&nbsp; The more research carried out and the more knowledge gained ultimately means fewer parents and families have to go through what we, and too many others, have.</span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 0pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">&nbsp;</span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 6pt;"><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">As a family, we are determined that something positive should come from our dreadful loss and I have wanted to do something to raise funds for this wonderful charity, in memory of Matilda, for some time; it was just a question of what.&nbsp; Those who know me well will know straight away that marathons and climbing mountains are not my style, but I wanted to do something fairly extreme with the aim of raising a considerable sum.&nbsp; Then I discovered that the <strong>Scumrun Rally </strong><a href="http://exchange.manorcarpets.com/exchweb/bin/redir.asp?URL=http://www.scumrun.com/index.php/"><span style="color: blue;">http://www.scumrun.com/index.php/</span></a>&nbsp;has </span><em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: purple; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">SPARKS</span></em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;"> as it's designated charity for 2012.&nbsp; So (deep breath), I&nbsp;have entered with my friend and colleague, Sean, under the team name&nbsp;</span><em><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: fuchsia; font-size: 10pt; mso-fareast-font-family: &#39;Times New Roman&#39;; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;">Miles for Matilda.</span></em></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 6pt;"><span style="color: #000000;"><span style="font-family: &amp;amp;quot; FONT-SIZE; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB; mso-fareast-font-family: &#39;Times New Roman&#39;;"><strong>2500 miles across Europe in four days, in a car worth no more than &pound;500!&nbsp; </strong>Each days destination is only revealed each morning and there are checkpoints along the way that have to be worked out, reached and photographic evidence provided.</span></span></p> <p><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-bidi-theme-font: minor-latin; mso-bidi-font-family: Calibri;">It's a huge undertaking but worth every ounce of effort for such&nbsp;a worthy charity.<span style="mso-spacerun: yes;">&nbsp; </span></span><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-bidi-theme-font: minor-latin; mso-bidi-font-family: Calibri;">Thank you very much for taking the time to visit my JustGiving page and thank you very much for every penny donated.</span></p> <p><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-bidi-theme-font: minor-latin; mso-bidi-font-family: Calibri;">You can keep track of our progress leading up the event and during by visiting <a href="http://www.milesformatilda.co.uk/scumrun">www.milesformatilda.co.uk/scumrun</a> (live towards the end of February) or by&nbsp;following @SusieLittle on Twitter.</span></p> <p><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-bidi-theme-font: minor-latin; mso-bidi-font-family: Calibri;">Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</span></p> <p><span style="font-family: &amp;amp;quot;Trebuchet MS&amp;amp;quot;,&amp;amp;quot;sans-serif&amp;amp;quot;; color: black; font-size: 10pt; mso-bidi-theme-font: minor-latin; mso-bidi-font-family: Calibri;">So please dig deep and donate now.</span></p> <p>&nbsp;</p>

Donation summary

Total
£8,499.50
+ £647.50 Gift Aid
Online
£3,912.50
Offline
£4,587.00

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