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Morven's Page
£22,195.35 raised of £30,000.00 target
313 donations
My Target:
£30,000.00
£22,195.35 raised so far
How to make a donation
Donate online at - www.justgiving.com/MorvensPage
By mobile internet Scan this code on your smartphone to go straight to Alex Hutchison's page.
By text message to donate £10 Text CIJH88 £10
to 70070
My story
New fundraising target for 2013 = £12,000
Total raised in 2012 = £12,619.76 - THANK YOU EVERYONE!
Total raised in 2011 = £5,309.18
Welcome to Morven's Just Giving page. This page has been set up to raise funds for Cystinosis Foundation UK.
Morven was diagnosed with cystinosis at 8 1/2 months old and has been subject to the gruelling medicine regime ever since. Cystinosis is an extremely rare inherited metabolic condition which prevents Morven from processing an amino acid called cystine. The build up of cystine forms crystals which initially impact her kidneys and eyes, and will go on to impact every other organ in her body. The drugs that Morven takes every six hours take steps to reduce her cystine levels and therefore slow her decline but a kidney transplant is inevitable.
By supporting Cystinosis Foundation UK we are looking to assist the charity in meeting its aims which include; supporting cystinotics and their families, raising awareness and promoting research into the treatment of cystinosis.
This is a small charity and as such every penny really does count and will make a real and tangible difference to Morven and other cystinosis sufferers. Medical advances can make massive strides in relatively few years, so we hope that the research into treatments and cures of cystinosis will be able to change the quality of Morven's life sooner rather than later.
We plan to raise money through various avenues on this page but feel free to donate at any time! And don't forget to Gift Aid your donation where possible.
My gallery 4
My charity
Cystinosis Foundation UK
Charity Registration No. 1074885
TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL
Donations 313
Thanks for organising this great event, we all enjoyed it xx
Donation by Morna Morrison on 19/05/13
£40.00
+ £10.00 Gift Aid
Donation by ronnie smith on 19/05/13
£20.00
Well done for organising a great event. We had a great time despite the weather!
Donation by Llinos, Dave and Nia on 19/05/13
£50.00
+ £12.50 Gift Aid
Really enjoyed the afternoon - despite the weather! Thanks for organising it.
Donation by Gail Jackson on 19/05/13
£30.00
+ £7.50 Gift Aid
xx
Donation by grant palmer on 19/05/13
£20.00
+ £5.00 Gift Aid
Great to take part in another WLRF for Morven! Really enjoyed it even in that weather! Thanks so much for organising it!
Donation by Mido on 19/05/13
£50.00
+ £12.50 Gift Aid
A great day running for a fantastic cause, and lovely meeting Morven - she's a cracker!
Donation by Jenny and Barbara on 18/05/13
£20.00
+ £5.00 Gift Aid
Thanks for organising an amazing day. Running for such a worthy cause doesn't get much better :) xx
Donation by Victoria, Julian and family. on 18/05/13
£30.00
+ £7.50 Gift Aid
Many thanks for the superb organisation of the West Linton Running Festival! Great fun...... even in the peeing rain! :-)
Donation by Dave, Stelly, Oscar and Hamish on 18/05/13
£50.00
+ £12.50 Gift Aid
Running festival donation
Donation by David Russell on 18/05/13
£20.00
+ £5.00 Gift Aid
Well done Angus!
Donation by Elaine Gunn on 18/05/13
£10.00
+ £2.50 Gift Aid
Great cause and hope the running festival is a success!
Donation by Rachel Strudley on 18/05/13
£15.00
+ £3.75 Gift Aid
Lorraine, Shame you can't run on the day, especially after all the training.
Donation by Richard Smith on 18/05/13
£20.00
+ £5.00 Gift Aid
Hope you all have a great time - slight drizzle better than getting baked to a crisp surely...
Donation by Sara Innes on 18/05/13
£25.00
+ £6.25 Gift Aid
Looking forward to tomorrow x
Donation by Sandie and Karl Lloyd on 17/05/13
£25.00
+ £6.25 Gift Aid
Hoping for warm running & BBQ sunshine tomorrow ... this is going to bring good karma.
Donation by Kirsten Wilson on 17/05/13
£20.00
+ £5.00 Gift Aid
Good luck Angus - rather you than me! :)
Donation by Nicola Murray on 17/05/13
£10.00
+ £2.50 Gift Aid
All the best Gussy Gunn!
Donation by Neil Cairns on 17/05/13
£10.00
+ £2.50 Gift Aid
Donation by Helen Ryall on 17/05/13
£20.00
+ £5.00 Gift Aid
Good luck Angus!
Donation by Theresa Byrne on 15/05/13
£10.00
+ £2.50 Gift Aid
Good luck Angus ...a great cause so well done but I am expecting a quick time
Donation by Ian Cheeseman on 13/05/13
£10.00
+ £2.50 Gift Aid
Good Luck Angus you will need it!
Donation by Chris Pullen on 13/05/13
£10.00
+ £2.50 Gift Aid
Ben and Jen's running festival donations. Looking forward to it! Gulp!
Donation by Jen and Ben Jones on 09/05/13
£40.00
+ £10.00 Gift Aid
Funds raised at swap party and from Captain Tortue sales. Much appreciated LB.
Donation by Alex Hutchison on 05/05/13
£49.00
To a very worthy cause - have signed up for West Linton Half in May 2013
Donation by Christopher Burns on 05/05/13
£10.00
+ £2.50 Gift Aid
Donation summary
- * Online donations£19,788.85
- Offline donations£2,406.50
- Text donations£0.00
- Total raised£22,195.35
- Gift Aid£2,391.92
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
