Story

New fundraising target for 2013 = £12,000

Total raised in 2012 = £12,619.76 - THANK YOU EVERYONE!

Total raised in 2011 = £5,309.18

Welcome to Morven's Just Giving page. This page has been set up to raise funds for Cystinosis Foundation UK.

Morven was diagnosed with cystinosis at 8 1/2 months old and has been subject to the gruelling medicine regime ever since. Cystinosis is an extremely rare inherited metabolic condition which prevents Morven from processing an amino acid called cystine. The build up of cystine forms crystals which initially impact her kidneys and eyes, and will go on to impact every other organ in her body. The drugs that Morven takes every six hours take steps to reduce her cystine levels and therefore slow her decline but a kidney transplant is inevitable.

By supporting Cystinosis Foundation UK we are looking to assist the charity in meeting its aims which include; supporting cystinotics and their families, raising awareness and promoting research into the treatment of cystinosis.

This is a small charity and as such every penny really does count and will make a real and tangible difference to Morven and other cystinosis sufferers. Medical advances can make massive strides in relatively few years, so we hope that the research into treatments and cures of cystinosis will be able to change the quality of Morven's life sooner rather than later.

We plan to raise money through various avenues on this page but feel free to donate at any time! And don't forget to Gift Aid your donation where possible.

Raising money for

Cystinosis Foundation UK

Cystinosis Foundation UK

Charity Registration No. 1074885

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Donations 451

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running club subs for next few months

Donation by BELGIN DAVIDSON on 07/04/14

£20.00

+ £5.00 Gift Aid

From Bellas friends at Kingsmeadows Nursery on her 4th birthday. Leon, Aimee, Anna, Liberty, Aran, Lucas, Mia, Lauren, William, Freddie, Owen, Kate, Ben, Charis, Max and Ella, Grace and her cousins.

Donation by Gillian Graham on 05/04/14

£100.00

+ £25.00 Gift Aid

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From Bella's Friend Aimee Morton

Donation by Sharon Morton on 03/04/14

£15.00

From Aran Clark Bella s friend

Donation by Anonymous on 02/04/14

£10.00

+ £2.50 Gift Aid

Running Club Subs

Donation by Morag on 17/03/14

£10.00

+ £2.50 Gift Aid

From everyone at Stanley Odd

Donation by Anonymous on 05/03/14

From your friend @knitting for cancer. Hoping March will be a magic month!

Donation by Fran on 01/03/14

$25.00

Wristband sales

Donation by Ralph Campbell (via NH) on 13/02/14

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 10/02/14

£20.00

+ £5.00 Gift Aid

Keep up the great work! Hope we are making tiny changes!

Donation by Fran @ Knitting for Cancer on 05/02/14

$30.00

Running club subs

Donation by Gillian O'Hare on 05/02/14

£50.00

+ £12.50 Gift Aid

Running Club (6 months subs)

Donation by Martha on 29/01/14

£50.00

+ £12.50 Gift Aid

Running subs for the next couple of months!

Donation by Fiona on 28/01/14

£25.00

First half of 2014 running club subs

Donation by Morag Everest on 28/01/14

£50.00

+ £12.50 Gift Aid

Wishing you all the best with the bike ride. Lots of love

Donation by The Birds on 25/01/14

£200.00

+ £50.00 Gift Aid

from the dalgleish hutchys to the miller hutchys...for the great big cycle. love you all xxxxx

Donation by fiona dalgleish on 22/01/14

£100.00

+ £25.00 Gift Aid

Running club subs for another few months!

Donation by Pamela Todd on 20/01/14

£54.00

+ £13.50 Gift Aid

Donations from New Years Eve New Yorker dinner party guests at the Murphy homestead - The Pluchinos, Kate Gould, Tony B, Justin and Dan, KJ and Ella x

Donation by #murphyhomestead on 09/01/14

£101.00

Money for the handcrafted play mat. Thanks Marion It's ace.

Donation by Lynne Treacy on 08/01/14

£35.00

+ £8.75 Gift Aid

Movember collection!!

Donation by Michael - West Linton Training on 08/01/14

£22.20

+ £5.55 Gift Aid

Just rounding up to a whole number to round the year off. Happy New Year and congrats with all the fundraising efforts!

Donation by Kirsty Tulloch on 31/12/13

With very best wishes

Donation by Anonymous on 18/12/13

Bits and pieces from Gran and Grandad's piggy bank

Donation by Marion Hutchison on 16/12/13

£27.00

+ £6.75 Gift Aid

Money raised at Marion and Dorothy's Selkirk pop up shop - ' Bears, Bags, Quilts and Snakes for Cystinosis'

Donation by Marion Hutchison on 16/12/13

£707.00

+ £176.75 Gift Aid

Donation at Selkirk pop up shop from Liz and Ian. Many thanks.

Donation by Ian Thompson on 15/12/13

£30.00

+ £7.50 Gift Aid

Donation summary

  • * Online donations£30,179.62
  • Offline donations£3,065.89
  • Text donations£0.00
  • Total raised£33,245.51
  • Gift Aid£3,644.27

* Charities pay a small fee for our service. Find out how much it is and what we do for it.