Raised: 67%
 
Target: £15,000.00
Raised so far: £10,145.00
Qr Code  Use your mobile phone to donate now using this QR Barcode

 

Neve was a happy, healthy little girl with a captivating smile and a love for everyone.

Neve was taken into hospital on 28th April with an ongoing seizure - the hospital couldn't stop it and eventually she was placed in a coma on life support and transfered to St Mary's PICU where she stayed for 10 days.

A Mitochondrial Disease was suspected but the hospital continued with EEG's, MRI's, CT Scans, Ultrasounds, 4 Lumber Punchers and numerous blood tests. Eventually they performed a muscle and skin biopsy they advised the results would take 6-8 weeks.

As Neve had a 11 week old sister Reese, St Mary's transfered her back to our local hospital at the end of May on the Bank Holiday. 

We were finally given the results of the biopsy on the 9th June, Neve had Alpers Disease - the doctors predicted that she would only have days, maybe weeks to live.

Neve lost her battle with Alpers 6 days later on the 15th June - she died peacefully in our arms 9 days before her 2nd birthday.

6 weeks after Neve died, Reese was also diagnosed with Alpers. The doctors and specialists advised us just to enjoy the time with Reese, they couldn't tell us how long she would have with us and there was no treatment they could offer.

We put in place a care plan for Reese so that she would not suffer when the siezures started.  Reese lost her batte with Alpers on 23rd March'11, 12 days before her first birthday.

All money raised for Neve and Reese and the Ryan Stanford Appeal will be used to investigate the disease, hopefully to find a cure, as at the moment this disease is always terminal and  watching the little girl's you loved so completely taken from you is devastating - no parent should have to go through this, ever.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

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This money came from the beauty day, so generous of everyone, especially Louise. Donation by Stephanie Seeley on 16/05/11

 
£360.00 + £90.00 Gift Aid
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A small donation from selling the pink bands...from your friends in Cape Verde.. Steve,Ann,Bill,Liz,Steve,Ang,Dave,Vicky,Gazza,Mark,Mags.. Donation by steve johnson on 14/02/11

 
£80.00
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ian and sam good luck hope you reach your target you can get the beers in at baileys next time Donation by nicholas cherry on 25/01/11

 
£20.00
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We all miss you very much, but do not have to look far because we know inside or hearts that is where you are. God bless our little angel Donation by Auntie Linz,Kirsten,Nick,Colin & Alison on 17/12/10

 
£55.00
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good luck, love to you all, steph, john & kids xxxx Donation by Stephanie Burgess on 10/11/10

 
£300.00 + £84.62 Gift Aid
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i hope this helps you reach your target amount. i wish we could do more. Donation by paul seagrove on 23/10/10

 
£300.00 + £84.62 Gift Aid
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to Ian and family, hope this can help towards your target x Donation by Lisa Garvey and family on 08/10/10

 
£50.00
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Hope you reach your target on Saturday Rose & Peter Griggs Donation by PETER GRIGGS on 08/10/10

 
£50.00 + £14.10 Gift Aid
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Donation by Enrico Loggia on 30/09/10

 
£300.00 + £84.62 Gift Aid
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happy birthday sam. we wanted to buy you that superdry hoodie but know that this is a much better gift. lots of love and big hugs xx Donation by mix and cookie on 27/09/10

 
£50.00 + £14.10 Gift Aid
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You brought such joy into our lives and will live in our hearts for ever - NanaMo and Gramps xx Donation by Maureen Vincent on 27/09/10

 
£25.00
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All our love Dom, Helen, Laina & Maisie xxxx Donation by Dominic Vincent on 25/09/10

 
£25.00 + £7.05 Gift Aid
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hope you reach your target.... Donation by Mark Cowley on 20/09/10

 
£20.00 + £5.64 Gift Aid
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This donation comes from Dixie Donation by Stephanie Seeley on 06/09/10

 
£20.00
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From Asmi. X Donation by Mix vincent on 04/09/10

 
£20.00
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We are thinking of you and wish you luck with the research. All our love, The Littley family. Donation by Frederick Littley on 23/08/10

 
£50.00 + £14.10 Gift Aid
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A BIG thank you for our Ascot day - raised a lot of money and had lots of fun. Donation by Sam Seeley on 08/08/10

 
£410.00 + £115.64 Gift Aid
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Thank you Simi very much, Neve loved her godmother. Donation by ian seeley on 06/08/10

 
£170.00 + £47.95 Gift Aid
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Donation by Richard Knight on 05/08/10

 
£20.00 + £5.64 Gift Aid
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thank you Julie x Donation by Sam Seeley on 04/08/10

 
£25.00
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Donation on behalf of Gerry & Maureen Sudbury - Paul's Dad and Step Mum. xxx Donation by Joanna Sudbury on 27/07/10

 
£10.00 + £2.82 Gift Aid
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I lost my Daughter Zoe in January so I can share your feelings of devastation. My thoughts are with you Donation by sally burrows on 26/07/10

 
£10.00 + £2.82 Gift Aid
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Donation by Peter Smyth on 25/07/10

 
£30.00 + £8.46 Gift Aid
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Good luck with the fund raising Sam. Our thoughts are with you all. xxxx Donation by Lesley Plowman on 23/07/10

 
£30.00 + £8.46 Gift Aid
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Good luck with the fundraising Sam. My thoughts are with you all. Donation by nick johnson on 18/07/10

 
£50.00 + £14.10 Gift Aid
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* Total raised online: £2,605.00
  Offline donations: £7,540.00
  Mobile donations: £0.00
  Total Raised: £10,145.00
  Gift Aid plus supplement: £632.95

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