Nicolas Diara

Nico's Cure for Dylan

Fundraising for Reverse Rett
£1,488
raised of £1,200 target
by 50 supporters
Donations cannot currently be made to this page
Event: Survival of the Fittest
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Dylan, Ali's niece, was diagnosed with Rett's syndrome shortly after her 2nd birthday.

Rett’s is a debilitating disorder which is like Parkinson's, cerebral palsy and autism all in one little girl.  Although rare, every 5 hours a girl is born with Rett Syndrome.  Without a cure, Dylan will suffer from epilepsy, breathing difficulties and scoliosis. Most girls with Rett Syndrome will end up in a wheelchair being fed through a tube. Life expectancy is poor.

However, it doesn’t have to be this way. Amazing breakthrough research means scientists are on the cusp of developing a cure for Retts.  Please help scientists to develop a cure. Rett Syndrome has the potential to be the world’s first curable brain disorder.

Please sponsor me to help fund this amazing work and potentially save Dylan’s life.

Thank-you so much,

Nico

 

Thank you so much!

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,487.95
+ £297.50 Gift Aid
Online donations
£1,487.95
Offline donations
£0.00

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