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Nico's Cure for Dylan

Nicolas Diara is raising money for Reverse Rett
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Survival of the Fittest · 16 November 2013 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Dylan, Ali's niece, was diagnosed with Rett's syndrome shortly after her 2nd birthday.

Rett’s is a debilitating disorder which is like Parkinson's, cerebral palsy and autism all in one little girl.  Although rare, every 5 hours a girl is born with Rett Syndrome.  Without a cure, Dylan will suffer from epilepsy, breathing difficulties and scoliosis. Most girls with Rett Syndrome will end up in a wheelchair being fed through a tube. Life expectancy is poor.

However, it doesn’t have to be this way. Amazing breakthrough research means scientists are on the cusp of developing a cure for Retts.  Please help scientists to develop a cure. Rett Syndrome has the potential to be the world’s first curable brain disorder.

Please sponsor me to help fund this amazing work and potentially save Dylan’s life.

Thank-you so much,

Nico

 

Thank you so much!

Donation summary

Total
£1,487.95
+ £297.50 Gift Aid
Online
£1,487.95
Offline
£0.00

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