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O'Neills Bath Half for CMT

Francis O'Neill is raising money for Charcot-Marie-Tooth UK

Participants: Alex, George, Rosie

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Bath Half Marathon 2013 · 3 March 2013 ·

Charcot-Marie-Tooth UK (formerly CMT United Kingdom) is the national support group for people affected by Charcot-Marie-Tooth Disease, aka Hereditary Motor and Sensory Neuropathy. We provide advice, support and information for people with the condition, family, carers and medical professionals.

Story

Our youngest son Jonah was diagnosed with Charcot Marie Tooth disease when he was 12, having suffered for many years with apparent clumsiness, and tendency for frequent trips and falls.

Although he only suffers fairly mildly, and certainly not in any life threatening way, it is nonetheless a burden that he has to carry, and puts him at a disadvantage with his peers, especially through the increasingly competitive teenage years. His relentless spirit and humour help him deal with this.

CMT is an inherited genetic neurological disorder which damages peripheral nerves which supply the muscles and sensors in the limbs. If you would like to know more about CMT and its symptoms here are links to the CMT UK site - #mce_temp_url# , and relevant section of NHS site - #mce_temp_url#

So now it is our turn to help all the other sufferers - some quite severe - of CMT, by running this half marathon, with all your generous donations going to CMT UK.

For Alex and I this is our fifth half, and the first for George and Rosie.

Training is going well, though a bit disrupted for all of us with work/ study pressures, plus the weather in January. However we are on track for 3rd March in Bath, George having a target time of 1 hr 30, and the rest of us aiming to keep it under 2 hours.

Thank you for visiting our page, and we hugely appreciate any contribution that you choose to make. Remember to select the Gift Aid option (if you are a UK taxpayer) so that CMT can also claim back the tax.

Donation summary

Total
£1,783.66
+ £365.25 Gift Aid
Online
£1,783.66
Offline
£0.00

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