CHASE Children's Hospice has been an incredible part of our journey with Owen. We first came to CHASE at the end of Februrary after we'd taken Owen home from the Evelina hospital for two weeks. When we left Evelina we barely expected Owen to survive the journey home. We looked after Owen at home and it was hard. Really hard.

After 2 weeks we were utterly exhausted, physically, mentally and above all, emotionally. So we packed up and went to CHASE for 2 nights respite... we decided to stay on for the weekend... we ended up staying for 8 weeks!

The team at CHASE were incredible. They took on a lot of the jobs that needed doing but allowed us to still look after Owen ourselves, and they allowed us to look after Theo, to be mummy and daddy again, to have time for cuddles with both of our boys. They looked after us all, nothing was too much bother and the staff there have become like family. The most amazing thing was that as a family we could all stay together at the hospice.

We had the best of both worlds, a family, home-like environment but with the care and support for Owen's complex needs. The medical care was second to none and everybody understood what Owen needed at the end of his life and also what we needed. They gave us time to talk, to have privacy and to enjoy our family at a time when it seemed there could be no enjoyment left. They helped us to create special memories and mementoes.

We will be forever indebted to CHASE and I know this won't be the end of our journey with them.