Hi All

I am taking part in the British 10K London Race on Sunday 11th July to raise as much as I can for the The Batten Disease Family Association (BDFA).

My Niece Hannah was diagnosed with Juvenile Battens Disease in 2006.

Hannah was 9 years old at the time, and until 6 months previously, she was perfectly "normal". She was in mainstream school, reading, writing, and enjoying ballet and stage lessons. Nothing could have prepared any of us for the dreadful news when she started to lose her sight.

Hannah is now 12 years old - and coping extremely well with blindness, speech problems and epilepsy. Unfortunately the outlook for children with Juvenile Battens is not good. Its a degenerative brain condition which means children lose the ability to see, talk and walk, ending up bedridden until death occurs at an age when they should be starting a life for themselves.

The Batten Disease Family Association is there for advice and support to anyone having to cope with this awful illness and provide much needed funds for research.

And thats why I've decided to run in the British 10K London Race on Sunday 11th July to raise as much as I can for the BDFA. I'm running with Hannah's mum her partner and my brother inlaw.

My target is to raise £250 but with your help, I'd love to totally smash that amount ! Any donation would be greatly appreciated.

Training so far is going well, I started off running 2 miles and honestly thought i was going to die, im now up to 6 and a half miles and feeling not bad at all, although when i get home my wife still thinks i look like death.

Thank you

Paul.

 

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