Thanks for taking the time to visit my JustGiving page.
I have to say, I cannot believe I’ve let myself in for this... 742km from Rome to Nice in February on a bike, in 4 days, that's about 125 miles a day! I only got my bike a month ago having not ridden one for 30 years... pretty stupid I hear you say but then I read Tie's story (and believe me there are many more like his) and I thought a simple bike ride is nothing by comparison with what these poor children suffer every day. I mean, how hard can it be???This is a great opportunity for you, my friends, to have a laugh at my expense but it's gonna cost ya!
Tie’s story
Tie was born on 2 September 2006 with severe Recessive Dystrophic Epidermolysis Bullosa (EB). His skin can’t stick together. He blisters at the slightest knock and his clothes rub constantly. When Tie is tired and rubs his eyes, he causes additional wounds on his face.
Rolling around his bed gives him blisters across his entire body. After drinking he gets blisters in his mouth, down his throat and in his internal lining. When this happens, he struggles to eat or drink.
His blisters need to be constantly lanced by a needle then dressed to keep infection at bay.
Tie’s parents hope that one day it will be safe for them to give Tie a hug without worrying about the damage they could do to his fragile body.
Can you believe having to live each day like Tie and what about his poor parents watching their lovely son suffer every day! I don't think I need say more. Please give what you can, I know it will go to a very worthy cause and if you're having second thoughts just take a look at the photographs attached or find out more at www.debra.org.uk
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Right, I'm off to the gym.
Thank you very much.
Peter
