My story

DEBRA

 

www.debra.org.uk

 

Debra is the charity set up to support individuals and families with Epidermolysis Bullosa (EB).  This is a very rare genetic, inherited condition which currently affects 5000 sufferers in the UK.  For those with the condition, their skin and internal body linings blister with the slightest physical contact.  At its mildest, the blistering is confined to the hands and feet making holding things and walking extremely painful.  In more severe cases the whole body is affected; wounds heal slowly and it leads to scarring, physical deformity and significant disability.  The mouth and oesophagus blister and this makes eating solids impossible.  This can lead to malnutrition.  Excretion becomes intensely painful.  At its most severe it is fatal in infancy and there is a high risk of skin cancer for those who survive infancy.  There is, as yet, no effective treatment or cure.

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My charity

DEBRA

DEBRA

Charity Registration No. 1084958

DEBRA helps families affected by EB (Epidermolysis Bullosa), a genetic condition which causes the skin to blister and shear at the slightest friction. DEBRA provides a team of nurses and social care staff to work with families affected by EB and commissions world-leading research into the condition.

Donations 15

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Well done you! Another great race ticked!

Donation by Sue Camp on 01/06/12

£10.00

+ £2.50 Gift Aid

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'Twas never a chore! Well done, Phil.

Donation by Graham Cramp on 31/05/12

£10.00

+ £2.50 Gift Aid

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Twas a pleasure

Donation by Anthony Clark on 29/05/12

£20.00

+ £5.00 Gift Aid

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Always inspirational :)

Donation by Divya Kansagra on 28/05/12

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Well done and best wishes for a brilliant run! Heidi :)

Donation by Heidi Pegler on 28/05/12

£10.00

+ £2.50 Gift Aid

43:43 - excellent for sizzling conditions: well done old chap!

Donation by Andrew Kew Brown on 27/05/12

£20.00

+ £5.00 Gift Aid

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Best wishes on the day, Philip!!!

Donation by Alice Dvorakova on 25/05/12

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Have fun

Donation by Linda on 24/05/12

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well done Phil .... ...good luck and I hope the weather good running weather xxxxxx love Sue

Donation by susan Jeffreys on 21/05/12

£10.00

+ £2.50 Gift Aid

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Great cause Phil. Good luck!

Donation by Gemma Cory on 15/05/12

£10.00

+ £2.50 Gift Aid

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Leave the floraandfaunaparkruns to me Doctor, I'm the guide around here. YOU must just 'give it horns!'

Donation by Lloyd Camp on 06/05/12

£10.00

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All the best Phil ! Dont make it a gentlefloraandfaunaparkrun.

Donation by Amrut Sharma on 04/05/12

£10.00

+ £2.50 Gift Aid

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Phil, you're a lean running machine and an inspiration to us all! Go for a new PB!

Donation by Tomas Sterner on 03/05/12

£20.00

+ £5.00 Gift Aid

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Donation by Stuart Day on 01/04/12

£20.00

+ £5.00 Gift Aid

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Good luck Phil. Should be a great event.

Donation by Carl on 31/03/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£195.00
  • Offline donations£60.00
  • Text donations£0.00
  • Total raised£255.00
  • Gift Aid£46.25

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