<p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 0pt;"><span style="font-family: Times New Roman; font-size: small;">DEBRA</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 0pt;"><span style="font-size: small;"><span style="font-family: Times New Roman;">&nbsp;</span></span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 0pt;"><span style="font-family: Times New Roman; font-size: small;">www.debra.org.uk</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 0pt;"><span style="font-size: small;"><span style="font-family: Times New Roman;">&nbsp;</span></span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: Times New Roman; font-size: small;">Debra is the charity set up to support individuals and families with Epidermolysis Bullosa (EB).<span style="mso-spacerun: yes;">&nbsp; </span>This is a very rare genetic, inherited condition which currently affects 5000 sufferers in the UK.<span style="mso-spacerun: yes;">&nbsp; </span>For those with the condition, their skin and internal body linings blister with the slightest physical contact.<span style="mso-spacerun: yes;">&nbsp; </span>At its mildest, the blistering is confined to the hands and feet making holding things and walking extremely painful.<span style="mso-spacerun: yes;">&nbsp; </span>In more severe cases the whole body is affected; wounds heal slowly and it leads to scarring, physical deformity and significant disability.<span style="mso-spacerun: yes;">&nbsp; </span>The mouth and oesophagus blister and this makes eating solids impossible.<span style="mso-spacerun: yes;">&nbsp; </span>This can lead to malnutrition.<span style="mso-spacerun: yes;">&nbsp; </span>Excretion becomes intensely painful.<span style="mso-spacerun: yes;">&nbsp; </span>At its most severe it is fatal in infancy and there is a high risk of skin cancer for those who survive infancy.<span style="mso-spacerun: yes;">&nbsp; </span>There is, as yet, no effective treatment or cure. </span></p> <p>Thanks for taking the time to visit my JustGiving page.</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>