Philipp's Duchenne Dash

The Duchenne Dash · 6 June 2014 to 7 June 2014 ·
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This June I'm cycling to Paris in 24 hours to help save the life of boys with Duchenne Muscular Dystrophy (DMD). The Duchenne Children’s Trust (www.duchennedash.com) was set up by Emily and Nick Crossley, after their son, Eli was diagnosed with DMD, which is the most common fatal genetic disorder to affect boys. They cannot produce dystrophin, a protein necessary for muscle survival and as a result, every skeletal muscle in the body deteriorates. At the moment DMD is 100% fatal with no cure; most children die in their early 20’s from heart or respiratory failure and every child ends up in a wheelchair by the age of 12-14.
There really was no excuse not do to this. I have the time, need to be fitter and will enjoy the challenge; but most importantly, this is a great cause.
Scientists believe they are on the edge of finding a substantial treatment and possible cure for the disease to make these facts no longer true. As a result every penny of the money being raised is being spent RIGHT NOW on research. The Duchenne Children’s Trust is funding 8 projects in the UK and another in Holland – all of which show real promise. And they've met with politicians, scientists, regulators, and pharmaceutical companies – to push the case for quicker access to drugs.
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