Phoebe's page
£3,633.00 raised of £3,000.00 target
127 donations
My Target:
£3,000.00
£3,633.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/PhoebeKenyon
By mobile internet Scan this code on your smartphone to go straight to Phoebe Kenyon's page.
By text message to donate £10 Text DUWV83 £10
to 70070
My story
Thanks for taking the time to visit my JustGiving page.
My name is Phoebe and I am 3 years old. I live in Lostock Hall, Preston. I suffer from a rare neurological condition called Moebius Syndrome. I am one of only 200 sufferers in the UK. My condition causes facial paralysis so if I met you I could not smile at you or frown at you. I can't blink so I have to have special drops in my eyes and I cannot eat as my tongue and the mucles in my mouth don't work properly. Eating is a very scary thing for me to do because I am at risk of choking so I'm fed through a special tube into my tummy. My condition also causes low muscle tone so even though I'm 3 years old now I cannot walk like my friends can. I can crawl and I can sit up now and I have recently learnt to take a few steps with my walking frame.
I am lucky because since April 2011 I have been attending The Legacy Rainbow House in Mawdesley which is a charity that offers specialist therapy to children like me, with disabilities and brain injuries. The Legacy Rainbow House is the only place in the North that offers this therapy and is vitally important to me and to the other 80 children who attend therapy sessions.
When I started at The Legacy I was sitting unaided but since then the kind people at The Legacy Rainbow House have been working very hard with me. In less than a year they have taught me to crawl, to pull myself to standing and I am now taking a few steps with my walking frame. They have even taught me to eat small amounts of yoghurt from a spoon!
The first three winters of my life were spent in and out of hospital with life threatening chest infections. Because I wasn't mobile a simple cold quickly turned into a severe chest infection which meant I was often on various forms of ventilation, critically ill. Thanks to the staff at The Legacy Rainbow House I am now up and about much more and I have not had to go into hospital once this winter. Father Christmas actually visited me at home this year instead of in hospital!
The therapy sessions at The Legacy Rainbow House have changed my life and that of my family but now all of that might come to an end unless you can help me. We have just been told that the charity is running extremely low on funds and unless I raise £3000 by April thier services will have to be cut and I will not be able to access the therapy that I so desperately need.
We are working so hard to get me walking independently ready for when I start school in September. I really want to be able to run around the playground with my friends and I want to learn to eat so that I can sit and have school dinners with my friends. I don't want to give up now when I have come so far so I am pleading for your help.
My mum, dad and my family and friends are getting involved in various events to try and raise the money that I need. Please support them by donating to my page or sponsoring them using this page. All the money will go The Legacy Rainbow House on my behalf.
Please, please, please donate as much as you can, every pound will help me achieve my goal of £3000 so that my therapy sessions can continue and so that I can achieve my goal of walking to school.
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Thank you for reading my story and thank you for donating, it means so much to me and my family.
Love Phoebe xxx
My gallery 1
My charity
RAINBOW HOUSE
Charity Registration No. 1127498
Rainbow House helps children with physical disabilities between the age of 3 months - 16 years to become more active & independent through Conductive Education and Early Years services, aiming to achieve each childs goal in sitting, standing and walking and improve their social skills in eating, dressing and toileting, making integration into mainstream school and the community easier. Not only do we help children with disabilties such as Cerebral Palsy, Downs Syndrome, Metabolic & other genetic motor disorders, we also provide support for their families & carers.
Donations 127
Congratulations on walking 18 miles for the Rianbow Ramble ladies, very proud of you all xxx
Donation by Lindsey Boult De Araujo on 30/04/12
£10.00
+ £2.50 Gift Aid
This is the money I raised from the zumbathon. Sorry its late Pheebs, love Lindsey xxx
Donation by Lindsey Boult De Araujo on 30/04/12
£80.00
Well done on rainbow walk! Sorry its not much but its all i can give atm.
Donation by Joleen Kenyon on 30/04/12
£5.00
All the best Phoebe! Your a star Lyndsay!
Donation by Michael Fish on 20/04/12
£100.00
+ £25.00 Gift Aid
Hi, I'm a friend of Neil's, wishing you and your daughter all the best for the future. Dan and Tama
Donation by Dan Mawdsley on 04/04/12
£50.00
Totally behind you on fundraising for your beautiful girl and an amazing mummy. Not seen you in such a long time but always thinking of you xxx
Donation by Natalie Symington on 30/03/12
£20.00
+ £5.00 Gift Aid
This money was raised by all the staff on the Post Office Card Account, Preston, when they held a Dress Down Day.
Donation by Susan Burgess on 30/03/12
£68.00
+ £17.00 Gift Aid
Donation by Anonymous on 21/03/12
£20.00
+ £5.00 Gift Aid
Good Luck with the zumbathon Lindsey.
Donation by Susan Fernandez on 11/03/12
£5.00
+ £1.25 Gift Aid
Donation by marion ward on 07/03/12
Love to you all, keep up the good work sweetheart x
Donation by Amy Pomfret on 07/03/12
£100.00
+ £25.00 Gift Aid
Well done Phoebe. xxx
Donation by Shirley Boult on 04/03/12
£20.00
+ £5.00 Gift Aid
Donation by anna bracewell on 04/03/12
£20.00
+ £5.00 Gift Aid
Donation by Anonymous on 01/03/12
£5.00
+ £1.25 Gift Aid
For Phoebe With love from Great Aunt Doreen & Great Uncle Bob XX
Donation by Doreen Hothersall on 24/02/12
£50.00
+ £12.50 Gift Aid
This is from Daves sister becky all the way from Canada zx
Donation by Anonymous on 21/02/12
£20.00
+ £5.00 Gift Aid
Xx
Donation by Anonymous on 17/02/12
£10.00
+ £2.50 Gift Aid
with lots of love
Donation by Jennie Wales on 16/02/12
£10.00
+ £2.50 Gift Aid
For princess phebs xxx
Donation by Anonymous on 09/02/12
£30.00
+ £7.50 Gift Aid
All the best Phoebe : ) Plz continue 2give even tho the target has been raised, as all of the money will help and go 2wards Phoebe's therapy, thanks.
Donation by John Wilson, Harvey's Daddy x on 09/02/12
£410.00
+ £102.50 Gift Aid
Good luck on reaching your target. Your nearly there :-) xxxx
Donation by Emma Rhodes-Duckworth on 07/02/12
£20.00
+ £5.00 Gift Aid
Donation by jackie kearns on 07/02/12
£5.00
+ £1.25 Gift Aid
Donation by Anonymous on 06/02/12
£50.00
+ £12.50 Gift Aid
Good luck reaching your target thinking off u all. love nicola, dave n boys xxx
Donation by Nicola Fisher on 06/02/12
£20.00
+ £5.00 Gift Aid
You are doing a fantastic job Lyndsay!! Good luck for it all!!
Donation by Jen Regan on 06/02/12
£20.00
+ £5.00 Gift Aid
Donation summary
- * Online donations£3,633.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£3,633.00
- Gift Aid£822.50
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
