http://vimeo.com/31396555

Hannah was a perfect little girl who developed normally for 18 months. Then her development slowed and her acquired skills started to deteriorate. She was diagnosed with Rett syndrome just before she turned 3. She will never be able to speak, read or write; her hand function has already deteriorated; her mobility has already decreased. Every day is a watching and waiting game: a grieving for what she never learned to do; a celebration of what she can do today and a terror of what she may not do tomorrow.

 

Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders…all in one little girl. That's Rett. Every five hours a girl is born with Rett syndrome. She will appear to develop normally for 12-18 months, but then the symptoms of Rett will start to reveal themselves, including:

·         Loss of acquired skills, including mobility and hand function

·          Disordered breathing

·         Severe digestive problems

·         Difficulty eating, chewing and swallowing

·         Orthopaedic abnormalities such as  scoliosis and fragile bones

·         Disrupted sleep patterns

·         Extreme anxiety and frustration

·         Seizures

·         Impaired cardiac and circulatory function

·         Parkinson-like tremors

·         Sudden and unexplained death

There is no cure for Rett Syndrome. Yet. We need your help.

For more information about Rett Syndrome and how your donation will help, please visit www.RettUK.org

THANK YOU