Hellooooooooooo!

Thanks for taking the time to visit my JustGiving page
As some of you may already know, two very dear friends of mine have a wonderful little boy called Archie, who was diagnosed with Ty-Sachs Disease just before Christmas at the age of around 18months old and since then, we have all rallied around to try and raise money against this dreadful disease.
So I have pledged my-self to jump out of a plane (with a parachute & a strange man strapped to me) in a bid to raise as much money as I possible can for The CATS Foundation (Cure And Action for Ty-Sachs).
I really want to raise as much as I possibly can for my friends and for this charity so please can I ask for your support and sponsorship - you have know idea how much it means!!
Because Ty-Sachs is such a rare (and unknown) disease I have put some info below just to give you an idea as to what it means for Beautiful Archie & his wonderful Family.
Thanks For Reading xxxxxxxxxxxx
Juvenile Tay-Sachs is a very rare form of Tay-Sachs in children and is the result of a lack or severely reduced level of the Hexosaminidase A (Hex-A) enzyme.
Early symptoms of Juvenile Tay-Sachs include lack of coordination or clumsiness and muscle weakness such as struggling with stairs. A child may also exhibit slurred speech, swallowing difficulties and muscle cramps.
Children with Juvenile Tay-Sachs slowly decline, losing their ability to walk, eat on their own and communicate. Children are prone to respiratory infections and often experience recurrent bouts of pneumonia while many have seizures.
Juvenile Tay-Sachs has a broad range of severity. In most cases, the earlier the first signs are observed, the more quickly the disease will progress. For example, a child with first symptoms at age 2 will decline faster than a child with first symptoms at age 5.
In Classic Infantile the destructive process begins in the fetus early in pregnancy, although the disease is not clinically apparent until the child is several months old. By the time a child with Tay-Sachs disease is three or four-years old, the nervous system is so badly affected that life itself cannot be supported. Even with the best of care, all children with classic Tay-Sachs disease die early in childhood, usually by the age of 5, although some do live longer.
At the moment there is no cure for Tay-Sachs or its associated diseases. Children affected with Tay-Sachs have no hope unless we help raise funds to aid the research on the way.
A cure for Tay-Sachs will also mean a cure for over 70 other Lysosomal Storage Diseases as well as other neurological conditions such as Parkinson’s, Alzheimer’s and Multiple-Sclerosis

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.