My story

Thank you so much for taking the time to visit my JustGiving page.

I have Birdshot chorioretinopathy, a rare disease which leads to blindness. Like many rare diseases, very little is known about why we get it and how we can prevent it.  It affects children and adults and is an auto-immune, chronic, blinding uveitis which is treated with toxic medications.  These medications severely affect our health, mortality and quality of life, but help us to preserve some sight.  At the moment, there is no known cure for Birdshot. 

Together with Annie Folkard, I set up a charity - BUS, the Birdshot Uveitis Society (find it at: www.birdshot.org.uk ) to support people with Birdshot  (we support more than 300 people) and to find a cure or less toxic medications so we can stop the next generation from losing their sight or losing their health to this disease.  Fight For Sight are working with us and I am night walking for 15 miles on my birthday, 21 September, to raise money to go towards a birdshot biobank and research into Birdshot.  This is quite a challenge, as those of us with Birdshot cannot see anything at night! Here's hoping we can find the correct route!

The biobank costs £140,000 and will hold blood and DNA samples from all us Birdshotters, so that research can be undertaken.  The biobank will be based in London, but will be accessed by researchers throughout the UK and internationally.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

All money donated to me will go towards Birdshot research, So please dig deep and donate now. 


 

My updates 2

I did it! Still suffering the after effects, but great fun and I am so grateful to all my wonderful friends. £855 raised so far. Keep it coming!

23/09/12 12:02

£575 raised so far, thanks to my very generous friends and family. Well on the way to funding research to find a cure. Thank you all so much.

24/08/12 19:34

My charity

Fight for Sight

Fight for Sight

Charity Registration No. 1111438

Fight for Sight is the leading UK charity dedicated to funding research to prevent sight loss and treat eye disease.

Donations 26

Donation by Linda Thomas on 09/10/12

£100.00

+ £25.00 Gift Aid

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Rea, you truly are an inspiration, Lots of love Silvana x

Donation by Silvana Bedford on 30/09/12

£50.00

+ £12.50 Gift Aid

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This is your (birth)day and you will make it ! Liddy x

Donation by Anonymous on 21/09/12

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Rea, you are amazing! All the best for the walk. Lots of love Sunita x

Donation by Sunita on 21/09/12

£50.00

+ £12.50 Gift Aid

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Good luck, Rea!

Donation by marie schlorff on 21/09/12

£20.00

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Hi Rea, All the best for the walk. I will be thinking of you, you are very brave. Love Susie x

Donation by Susan Harvey on 19/09/12

£30.00

+ £7.50 Gift Aid

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Go for it Rea - as if you wouldn't!

Donation by Richard Poxton on 12/09/12

£10.00

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Hello Rea! much love xxx rory

Donation by rory cunningham on 07/09/12

£15.00

+ £3.75 Gift Aid

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Well done Rea, I'm so proud of you!

Donation by Wendy Mullen on 04/09/12

£25.00

+ £6.25 Gift Aid

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Donation by Kevin Peers on 03/09/12

£20.00

+ £5.00 Gift Aid

Donation by Kathryn Griffiths on 02/09/12

£15.00

+ £3.75 Gift Aid

Donation by Anonymous on 01/09/12

£20.00

+ £5.00 Gift Aid

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Great cause, Rea

Donation by Jon H on 01/09/12

£15.00

+ £3.75 Gift Aid

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Good Luck Rea ..........

Donation by Felicity Monfries on 28/08/12

£20.00

+ £5.00 Gift Aid

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Donation by D on 25/08/12

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Good luck Rea

Donation by Mark Chatterton on 24/08/12

£20.00

+ £5.00 Gift Aid

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Rea we are so grateful to you for your kindness to us as a family, a family you did not even know. Thank you. You are a very good person.

Donation by Lucy Allan on 16/07/12

£300.00

+ £75.00 Gift Aid

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Don't fall over in the dark! We'll be rooting for you.

Donation by Richard & Mila on 26/05/12

£50.00

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Remember to take a torch! Will be thinking of you on your birthday.

Donation by Jools Murray on 13/05/12

£20.00

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Good luck Rea x

Donation by Jane Wood on 12/04/12

£10.00

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Jon and I promise to come and walk the course with you - we'll be your eyes, if you will be our legs!

Donation by Adrian on 04/04/12

£20.00

+ £5.00 Gift Aid

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You are my heroine and we love you.Good luck!

Donation by Takis & Sanna Hatzivasiliou on 26/03/12

£20.00

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best of luck Bill x

Donation by Bill Heath on 23/03/12

£50.00

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Awesome - all the very best for this well deserving cause.

Donation by Vivienne Millward on 16/03/12

£50.00

+ £12.50 Gift Aid

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Good luck with your target x

Donation by Anonymous on 16/03/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations$1,516.80
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$1,516.80
  • Gift Aid$298.08

* Charities pay a small fee for our service. Find out how much it is and what we do for it.