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Myalgic encephalomyelitis (ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, relapses, and specific cognitive disabilities.

My sister-in-law, close friend, is affected by ME/CFS and it has changed her life completely. The best discription of living with ME is like living with a gorrilla. The gorilla will cause problems in every part of your life. Your spouse may decide that they can’t deal with the gorilla, and leave. Your boss may get upset that you’ve brought the gorilla to work with you and it’s disrupting your colleagues, who don’t know how to deal with gorillas. You’re arriving for work wearing a suit the gorilla has slept on. Some days you don’t turn up at all because at the last minute, the gorilla has decided to barricade you into the bathroom or sit on you so you can’t get out of bed. Your friends will get cheesed off because when you see them - which isn’t often, because they don’t want to come to your house for fear of the gorilla and the gorilla won’t always let you out - your only topic of conversation is this darn gorilla and the devastation it is causing.

There is no known cause of ME meaning that there is also not yet a cure. Some beleive that it cause by a an outbreak of an infection while other believe it is cause by a traumantic effect.

ME Research UK exists to fund biomedical research into ME/CFS, to find its cause, to develop effective treatments and ultimately to discover a cure. In 12 years, it has funded 32 specific research projects in the UK and overseas – more than any other single organisation in the world outside the American continent.