My story

In May 2009 when she was just seven years old, Robyn Higgins was diagnosed with stage four neuroblastoma. The cancer had grown from her pelvis and spread to her bone marrow. Robyn immediately began treatment at the Royal Marsden Hospital, Surrey, where she received nine doses of chemotherapy followed by a surgery to remove the primary tumour. 

 

Since then, brave Robyn has endured 9 rounds of chemotherapy, a very painful stem cell harvest, 9 hours of surgery to remove the very large primary tumour from her pelvis – which left her unable to walk for 7 months – high dose chemotherapy to eradicate her bone marrow, followed by a stem cell transplant and then 15 rounds of radiotherapy. The next, and what should have been the final stage of Robyn's journey, brought the Higgins family to Philadelphia in America. Thanks to a successful fundraising drive, Robyn was able to receive immunotherapy and a drug called Accutane at the Children’s Hospital of Philadelphia. The aim of the therapy was to rid her little body of any the stray lurking cancer cells that cause such massive rates of relapse in Neuroblastoma.

 

However, just a year after completing the gruelling treatment, routine scans showed that Robyn had relapsed. Fortunately, Robyn responded really well to three cycles of ‘salvage chemotherapy’ but in the UK, there are no relapse studies or treatment protocols for relapsed neuroblastoma. In Philadelphia and in other hospitals in North America, there are relapsed neuroblastoma treatment protocols offered for Robyn and children like her. Without these options – the outcome for Robyn is unthinkable.

 

Robyn’s mum and dad do not have insurance for health care in America so Robyn's treatment comes at a great cost. Robyn’s mum Lisa said “please, please help us give our delightful, playful, brave, gorgeous, cheeky girl a future by donating in any way you can to Robyn's appeal. Any donation, however large or small, makes a real difference for Robyn. I cannot stress this strongly enough – you really would be helping to save a child’s life.”

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma (a very aggressive type of cancer that mainly affects babies and young children) to get help abroad if they can't join UK trials, or if they need a treatment that is only available outside the UK. We help with treatment costs, support families and fund research.

Donations 155

Donation by Matthew Gill on 26/05/12

£20.00

+ £5.00 Gift Aid

Donation by Ranjit Gokarn on 26/05/12

£100.00

+ £25.00 Gift Aid

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hope this goes someway towards helping. Was made aware by Andy Warren.....

Donation by Roger Atkinson on 25/05/12

£20.00

+ £5.00 Gift Aid

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For Andys 50th,and all the best for Robyn and the fund raising!Linda and John

Donation by linda rose on 25/05/12

£50.00

+ £12.50 Gift Aid

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With lots of positive thoughts

Donation by Robbie Semple on 25/05/12

£20.00

+ £5.00 Gift Aid

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A Happy 50th to Bunny Warren - but mores the point Good luck with the fund raising x

Donation by Arran Atkinson on 25/05/12

£50.00

+ £12.50 Gift Aid

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I hope ths helps! best wishes.

Donation by Jaeson Humphries on 25/05/12

£50.00

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Good luck with the fund raising for what is a truly worthwhile cause.

Donation by Richard Steer on 25/05/12

£100.00

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All the best on Sunday Mat!

Donation by Geeta Dhanjal on 25/05/12

£10.00

+ £2.50 Gift Aid

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Best Wishes

Donation by Gregori family on 23/05/12

£100.00

+ £25.00 Gift Aid

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Best wishes.

Donation by Ginnelly family on 23/05/12

£100.00

+ £25.00 Gift Aid

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Good Luck Mat and thinking of you Robyn

Donation by Mark Jones on 23/05/12

£20.00

+ £5.00 Gift Aid

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Thinking of You, Robyn, and Good Luck to Mat in the Triathlon xx

Donation by Roger @ Cookham Graphics Limited on 22/05/12

£50.00

+ £12.50 Gift Aid

Love and Best Wishes

Donation by Gerry Neeves on 22/05/12

£50.00

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Donation by Sarah Easterbrook on 22/05/12

£10.00

Donation by Joanne Woodgate on 21/05/12

£20.00

+ £5.00 Gift Aid

Donation by nicola cavaliere on 21/05/12

£10.00

+ £2.50 Gift Aid

Donation by Julie Brackley on 21/05/12

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 21/05/12

£1.00

+ £0.25 Gift Aid

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Matt - all the best with the triathlon.

Donation by Colin Whitaker on 21/05/12

£25.00

+ £6.25 Gift Aid

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Donation by Drive Assist UK Ltd on 21/05/12

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We are all behind you, good luck. Its time for something to go well. Nick XX

Donation by Nick Chalkley on 21/05/12

£100.00

+ £25.00 Gift Aid

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Best wishes, we'll be thinking of you

Donation by nigel doggett on 21/05/12

£100.00

+ £25.00 Gift Aid

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Mat - good luck with the triatholon Carol

Donation by Carol Arbon on 21/05/12

£10.00

+ £2.50 Gift Aid

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Matt, Good luck with the race I expect you to win it as well for a noble cause. mark

Donation by mark staley on 21/05/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£5,052.00
  • Offline donations£0.00
  • Text donations£284.00
  • Total raised£5,336.00
  • Gift Aid£1,035.75

* Charities pay a small fee for our service. Find out how much it is and what we do for it.