FPWR Coast to Coast Scotland Superheros

Ross Gard is raising money for Foundation for Prader-Willi Research UK
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fpwrscotlandcoasttocoast2016 · 25 August 2016

The aim of Foundation for Prader-Willi Research UK (FPWR UK is to overcome the challenges of Prader-Willi Syndrome (PWS) through advancing research. High-quality research leads to more effective treatments and a better quality of life. FPWR UK was founded in 2010 by parents of children with PWS.

Story

Thanks for taking the time to visit my JustGiving page.

A group of 20 or so randoms dressed as superheros going from Fort Williams to Inveress by cycling, walking and canoeing in 3 days to raise funds and awareness for the rare Prader Willi Syndrome (PWS), not enough people know about this condition that drastically effects the lives of those affected. My cousin's little man has it and he is amazing, the happiest boy I've met and he deserves better.

Harvey Price (Katie "Jordan" Price's son) has PWS, beyond that most people have never heard of it.

there are clinical trials and studies being help at the moment to research ways to improve the lives of those affected, we need to continue to fund those studies to make that vital break through.

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Donation summary

Total
£375.00
Online
£375.00
Offline
£0.00

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