On the 22nd April 2018 I will be running the Virgin London Marathon in honour of my nephew Jack William Dorrington.

Jack was born 25th May 2017 and on the 12th July 2017 our world was torn apart when Jack was diagnosed with SMA type 1, an incurable and fatal genetic disease.

Jack sadly passed away on 28th August 2017 aged 3 months, 3 days old.

SMA is the leading genetic killer of infants and toddlers, yet awareness of this disease is surprisingly low and we are doing as much as possible to raise funds to support finding a cure and at the very least, raise much needed awareness.

SMA is currently incurable

1 in every 6000 births is affected by SMA

1 in every 40 people is a carrier of the defective gene that causes SMA

The child of two carriers has a 1 in 4 change of developing SMA.

Thanks in advance for your generous donations.

#TeamJack