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jill's Morrisons Great Manchester Run 2015 page

Jill Nightingale is raising money for Reverse Rett
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Morrisons Great Manchester Run 2015 · 10 May 2015 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Thanks for taking the time to visit my JustGiving page.

Aimee was diagnosed with Rett syndrome just before her second birthday, I'd never heard of it, the weeks/months after that day had me searching, desperately for answers, there must be something I can do? I love my daughter with every bone in my body, I want nothing more for her than for her to be free from Rett syndrome, it's taken far too much from us all ready as a family, at the moment she can't sit or stand on her own, she has no mobility, her food needs blending and she drinks off a spoon or with help with a straw,  she relies on us for her every need, she's definately in there! shes waiting for me to help her! I can't express how much I know she understands whilst she has no speech or no hand use for her to be able to communicate for herself but I know she understands every word. Aimee has an incredible love of music and dance, unfortunately  coming up to nearly 7 years of age dancing is  getting harder!!!! We are raising funds to make Aimee's future brighter and free from the worries that a rett diagnosis brings, we have the potential to make this better, please help me make this a reality for Aimee 

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Donation summary

Total
£1,021.00
+ £212.75 Gift Aid
Online
£1,021.00
Offline
£0.00

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