Jill Nightingale

jill's Morrisons Great Manchester Run 2015 page

Fundraising for Reverse Rett
£1,021
raised of £620 target
by 37 supporters
Donations cannot currently be made to this page
Event: Morrisons Great Manchester Run 2015, on 10 May 2015
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

Aimee was diagnosed with Rett syndrome just before her second birthday, I'd never heard of it, the weeks/months after that day had me searching, desperately for answers, there must be something I can do? I love my daughter with every bone in my body, I want nothing more for her than for her to be free from Rett syndrome, it's taken far too much from us all ready as a family, at the moment she can't sit or stand on her own, she has no mobility, her food needs blending and she drinks off a spoon or with help with a straw,  she relies on us for her every need, she's definately in there! shes waiting for me to help her! I can't express how much I know she understands whilst she has no speech or no hand use for her to be able to communicate for herself but I know she understands every word. Aimee has an incredible love of music and dance, unfortunately  coming up to nearly 7 years of age dancing is  getting harder!!!! We are raising funds to make Aimee's future brighter and free from the worries that a rett diagnosis brings, we have the potential to make this better, please help me make this a reality for Aimee 

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,021.00
+ £212.75 Gift Aid
Online donations
£1,021.00
Offline donations
£0.00

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