Story
On Saturday 25th September staff, children and supporters of The Children's Trust are taking part in a 'Sleepwalk'.
The team of over 350 will be walking 10 miles under the stars to help raise funds for children with multiple disabilities, for whom a good night's sleep is a rare luxury.
This page is for supporters wishing to make a donation to The Children's Trust Sleepwalk event, who may not be able to attend on the evening or those who are yet to set up a JustGiving page.
The Children's Trust, Tadworth provides care, education, therapy and rehabilitation to children with multiple disabilities, complex health needs and acquired brain injury
We are pleased that a number of parents whose children access the services at The Children’s Trust will be taking part in the Sleepwalk. One of the parents take part is Charlotte, a mother of three from who will be walking for her 14-year-old daughter, Eleanor, who receives specialist care and education at The Children’s Trust. will be joined by family, friends and parents from , where her youngest son, attends.
Charlotte and her husband were thrilled when their daughter, Eleanor, was born. Eleanor appeared to be healthy and, although nothing was immediately apparent, was convinced that something was very seriously wrong with their daughter. She said: “It was a mother’s instinct: Eleanor was always crying or screaming and hardly ever slept and, despite various tests, doctors could find nothing wrong. Months later, after an MRI scan at Atkinson Morley Hospital, Eleanor was diagnosed with a very rare brain disorder – lissencencephaly and scizencephaly, one affecting the left side of her brain and one affecting her right. It was a devastating blow and we were told that she was not expected to survive the first year of her life.”
It was at this point that Eleanor was referred to The Children’s Trust for palliative care. However, Eleanor proved the doctors wrong and 14 years later is now in her third year as a student at the Trust’s residential school ‘The School for Profound Education’ (formerly St Margaret’s), which provides education for children with profound and multiple learning difficulties. said: “Although Eleanor cannot walk, or talk and has limited vision, she has excellent hearing and she is a very happy child - always smiling and laughing. She loves being in the company of others. Eleanor receives the best possible care at the Trust, in a home-from-home environment, with the 24/7 specialist care that her complex health needs requires. Knowing that she is settled and in expert hands means that life has really turned around for us and, for the first time, our family was able to go away on holiday this year. Knowing the difference that The Children’s Trust has made to Eleanor’s life and my family’s lives, I am determined to make a difference too. I hope that by taking part in Sleepwalk, I will help awareness of The Children’s Trust and its marvellous work.”
To find out how your money can help and to see the children's inspiring stories, please click here.
Thank you very much for your kind donations in advance.
The Children's Trust Team
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