Story

Updated 07 February 2014

 

Sam is currently taking part in pioneering treatment for neuroblastoma in the United States.

Sam had been doing really well, then disaster struck... Sam had an accident!! He took a tumble on the final night of his first round of treatment. Sadly, Sam bumped his head and broke his arm. This meant that he had to have various X-rays and scans and underwent surgery to pin and set his arm.

The fantastic fundraising that went on to get Sam to Philadelphia has been a national news story and we can’t thank everyone enough. Unfortunately, the American healthcare system is very expensive and the original fundraising for Sam couldn’t have taken these types of accidents into account.

The additional medical costs have reached £30,000 and Sam now needs help from the amazing people who gave him the chance to undergo treatment in America.

Please would you consider helping Sam by making a donation? You can also make a text donation by texting SAMS67 and your amount £1 - £10 to 70070 you can make up to 3 text donations in any one day up to the maximum of £30. Donations by credit/debit card can be made over the phone by calling 020 7284 0800.

Alternatively if you would like to hold a fundraising event for Sam, please contact the fundraising team on 020 7284 0800 or email community@ncca-uk.org to discuss any ideas.

Sam’s parents Christine and Carl really do appreciate all the support you give.

Sam Shaw's fight against neuroblastoma

On the 4th January 2013 Christine and Carl Shaw’s beautiful little boy Sam was diagnosed with high risk neuroblastoma, a highly aggressive form of childhood cancer. Just 5 days later, Sam’s parents received the devastating news that their son’s cancer was classed as stage 4, meaning it had spread from the main tumour to Sam’s bones and bone marrow. 

The long term survival rate for children with high risk neuroblastoma remains at less than 40%, which is around half the average survival rate for childhood cancers. To give Sam the best chance of beating neuroblastoma for good, his oncologist at Manchester Children’s Hospital has recommended that Sam receives immunotherapy treatment. The most successful treatment uses the antibody ch14-18, and cytokines IL-2 and GM-CSF, trialled in America and proven by the Children’s Oncology Group to increase children’s chance of survival by 20%. This Immunotherapy treatment will help stimulate Sam’s immune system so that his own body should be able to recognise and attack the neuroblastoma if it was to return. This is the main worry with this deadly disease, where the relapse rates are high.

The treatment we hope Sam will receive in the United States is not available in the same format in the UK, where anti-GD2 and IL2, or just anti-GD2 alone, are given as part of a randomised trial. The proposed treatment and associated costs of over £250,000 will not be funded by the NHS which is why Sam desperately needs your help.

Sam’s mother Christine said, “As a parent all you want is to protect your child and see them grow up healthy and happy…Sam’s diagnosis has left us feeling completely helpless in the face of this terrible disease that has taken over our little boy’s body. He faces months of gruelling treatment including 80 days of intense chemotherapy, followed by surgery, further high dose chemotherapy, stem cell rescue, and radiotherapy and then, we hope immunotherapy in America.”

“Since he was diagnosed with neuroblastoma Sam has gone through so much; a procedure to have a central line inserted into his main artery to allow chemotherapy to be administered, countless X-rays, ultrasounds, gamma scans, echo cardiograms, ECG’s, MIBG scan, CT scans, biopsies, daily injections, the insertion of a nasal gastric feeding tube as well regular examinations, blood pressure checks, thumb pricks and more.  But at every stage he has been amazingly courageous – the doctors and nurses can’t believe how brave he is. He hardly ever cries, he takes his medicines on his own with no fuss and he is the best ‘sleeping lion’ when it comes to CT scans.  He is just our amazing hero.”

In the first few weeks following his diagnosis little Sam was very poorly. His parents could only watch and witness how the challenging treatment knocked the stuffing out of him. Christine said, “Sam lost weight rapidly before our very eyes and we felt our little boy slipping away, but then he showed us what a fighter he is! Sam has started to put weight back on, and we feel that our happy, cheeky, energetic little boy, so full of character, has returned to us.

We have seen how very fragile and then how resilient and robust Sam is. He has had his 40 day review and the results are encouraging. His tumour is responding to chemotherapy and the tests on the bone marrow aspirate show it to be clear of disease. This does not mean the cancer has gone from his bones, but is a very positive indicator that the treatment is working.  We now wait for the end of intensive chemotherapy results at 80 days and pray for more positive news!


Heartfelt thanks Christine & Carl Shaw

 

Please visit the NCCA UK Website on http://www.ncca-uk.org/ to find out more about Sam.

All donations are paid into NCCA UK’s general funds to further its general charitable purposes.  The funds raised by this Appeal are not restricted for Sam’s use.  However, the trustees of NCCA UK have agreed to designate funds raised by this Appeal to Sam and his family pay for treatment costs and all other associated costs including travel and accommodation.” If Sam no longer needs the funds, if the fundraising target is exceeded or insufficient funds are raised to fund the treatment, or if the trustees decide, at their absolute discretion, that the funds should be used for a different purpose, they may redesignate all or part of the funds for NCCA UK’s general charitable purposes.  We are very grateful for your charitable donation. For further information about NCCA UK and how we spend donations, please see our FAQs  http://www.ncca-uk.org/faqs

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to Sam's Appeal with the Neuroblastoma Alliance UK and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer.

Updates 1

To see the most up to date figure raised for Sam's appeal please click on Team Sam. Did you know you can also donate by text message? Please text SAMS67 £1 - £10 to 70070 thank you.

07/06/13 08:51

Raising money for

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

“All donations are paid into NCCA UK’s general funds to fund our charitable activities. Our charitable activities include: funding a child’s treatment against neuroblastoma, as well as sponsoring research, and promoting education and awareness of neuroblastoma.”

Donations 1620

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Donation by Jodie Crook on 03/04/14

£5.00

+ £1.25 Gift Aid

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Donation by Anonymous on 03/04/14

£1.00

+ £0.25 Gift Aid

Donation by Anonymous on 03/04/14

£10.00

+ £2.50 Gift Aid

£3.00 for my no make-up selfie (scary!). Love you Sam! XXX

Donation by Cathy Kenyon on 22/03/14

£3.00

+ £0.75 Gift Aid

So sorry Sam, hope things improve for you soon x

Donation by Anonymous on 20/03/14

£20.00

+ £5.00 Gift Aid

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Donation by Anonymous on 06/03/14

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 26/02/14

So sorry about this setback. Best wishes to Sam and his family. I really feel for you.

Donation by Alan Scholefield on 23/02/14

£10.00

+ £2.50 Gift Aid

text donation

Donation by Anonymous on 20/02/14

£1.00

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Get well Soon Sam. Thinking of you little buddy. Mike and Ben Atkins

Donation by Micha Atkins on 20/02/14

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 19/02/14

£30.00

+ £7.50 Gift Aid

text donation

Donation by Anonymous on 19/02/14

£5.00

Sending hugs to you and your family.Keep strong.xx

Donation by Anonymous on 19/02/14

£5.00

+ £1.25 Gift Aid

Good luck to you all.x

Donation by Sheila on 19/02/14

£10.00

+ £2.50 Gift Aid

text donation

Donation by Anonymous on 18/02/14

£10.00

text donation

Donation by Anonymous on 18/02/14

£5.00

+ £1.25 Gift Aid

Thinking of you xx

Donation by Anonymous on 18/02/14

£10.00

+ £2.50 Gift Aid

keep fighting x

Donation by Jo Edwards on 18/02/14

£10.00

+ £2.50 Gift Aid

Donation by Gemma Freeman on 18/02/14

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 18/02/14

xxxx

Donation by Vanessa Kelly on 18/02/14

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 13/02/14

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 13/02/14

£10.00

+ £2.50 Gift Aid

keep fighting little soldier xx

Donation by Elaine Tim on 10/02/14

£20.00

+ £5.00 Gift Aid

x

Donation by Amanda Munslow on 10/02/14

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£51,995.55
  • Offline donations£54,688.00
  • Text donations£2,217.00
  • Total raised£108,900.55
  • Gift Aid£9,815.76

* Charities pay a small fee for our service. Find out how much it is and what we do for it.