In September 2012 we received the devastating news that our youngest son Jude has Duchenne Muscular Dystrophy, failing a medical break through Jude's life will follow a predetermined path mapped out by this progressive muscle wasting condition, he will no longer be able to walk by the time he reaches adolescence and will lose the use of every single muscle in his body thereafter .  He may need spinal rods to keep him upright and ventilation to help him breath.  Eventually his heart and lungs will fail and he will die.

There are no words to describe the utter devastation we felt upon hearing that Jude has this condition, we must prepare ourselves for his steady decline, the worst part without a doubt is being utterly powerless to help, to know we face a future without our beautiful little boy is impossible to believe.  Since his diagnosis I'm not ashamed to say I have cried everyday, spent hours scouring the Internet for answers and slept next to his bed unable to leave his side for a second watching him sleep so peacefully, wondering why I can't save him.

we have had the pleasure watching Jude develop into the amazing little boy he is today, full of fun and mischief, his beautiful smile can light any room and his laughter infectious, you know when Jude is around usually you can hear him before you can see him!

We are lucky enough to be surrounded by the most amazing family and friends who have given us so much love and support...we would like to thank you all.

Join us in raising as much Money as we can for Action Duchenne to help fund research into finding a treatment and ultimately a cure for DMD.

 

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