Sara and Emma's Dedham Vale10k. Doing it for Daisy

Sara Phillips is raising money for Funding Neuro
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Dedham Vale10k. Doing it for Daisy · 2 June 2018

We fund research that will lead to treatments and cures for neurological conditions, we bring researchers together and patients of all disorders, to share ideas, support innovation and deliver results. We are currently involved in trials for DIPG brain tumours, Parkinson's Disease and MND.

Story

We have signed up to this with friends and to support this amazing cause. 

See a little bit about Daisy's story and the trust below).

DIPG  is a rare brain disorder, mostly affects children, and the average life expectancy after diagnosis is just six to twelve months.

The CED treatment used by Daisy was pioneered by Professor Steven Gill and his team in Bristol. CED requires surgically implanting 3D-printed micro catheters into the brain, which then deliver chemotherapy directly into the tumour.

This experimental surgery gave Daisy a chance to treat DIPG, gain a much improved quality of life and a few more precious months with her family. Sadly, and owing to the current inevitability of the disease, Daisy passed away aged just seven-years-old.

Following Daisy’s passing, the Brooks formed the Do It For Daisy Trust. To date, the organisation has fundraised over £300,000 and helped transform the future for all children with childhood brainstem tumour DIPG. The inspirational Brooks family and their friends and colleagues have raised the money to run a clinical trial that will make Professor Steven Gill’s CED system available for the next generation of children who need it.

Donation summary

Total
£360.00
+ £81.25 Gift Aid
Online
£360.00
Offline
£0.00

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