Sarah Carr is fundraising for Neuroblastoma Children's Cancer Alliance

Page owner Sarah Carr

A stay in an "allegedly" haunted mansion in aid of the Jamie Inglis Appeal

Event: Neuroblastoma Alliance - Jamie Inglis Appeal between 31/12/2012 and 31/03/2013

Sarah Carr

£1,412.00 raised

55 donations

My Target:

£1,412.00 raised so far

Donate

How to make a donation

Donate online at - www.justgiving.com/Sarah-Carr1

By mobile internet Scan this code on your smartphone to go straight to Sarah Carr's page.

Qr Code

By text message to donate £10 Text ULPJ47 £10
to 70070

My story

Jamie has relapsed neuroblastoma. He has been fighting neuroblastoma, an aggressive childhood cancer, since he was 3 ½ years old. He has beaten the disease once but sadly the cancer has come back. Jamie’s immediate treatment will be radiotherapy and chemotherapy to try and get the disease under control. As we do not have any relapse treatment protocols in the UK, Jamie’s best chance of beating neuroblastoma is to travel abroad for treatment.

His best hope for survival lies in Germany. The treatment Jamie needs costs £250,000 and will not be funded by the NHS which is why he needs your support.

If you can help, please make a donation to the Neuroblastoma Alliance UK, or organise a fundraising event to raise money for Jamie's Appeal. Please give as much as you can afford to help save Jamie and other children like him. Every donation for Jamie, no matter how small, helps.

Jamie was diagnosed with stage four neuroblastoma in 2009, when he was just 4 years old. Jamie immediately began treatment in Dusseldorf, Germany, where the family were stationed with the Royal Army Medical Corp. Jamie battled through chemotherapy, pneumonia, sepsis, surgery, high dose chemotherapy, a stem cell harvest, and a stem cell transplant in Dusseldorf, Germany. Jamie then joined an antibody trial in America to target the minimal residual disease with the hope of increasing his chances.

In March 2010 Jamie, with his parents John and Vicky and little sister Poppy, left the UK for the Children’s Hospital of Philadelphia after fundraising for the treatment costs with the support of their local communities in the UK and Germany. Jamie’s treatment in Philadelphia began with 12 rounds of radiotherapy before beginning the ch14.18 antibody treatment – involving the antibodies given alongside IL2 and GM-CSF. At this time, Jamie’s scans and bone marrow biopsies showed no evidence of neuroblastoma.

Brave Jamie had five rounds of antibody treatment at CHOP and suffered many side effects – shingles from the chemotherapy, an allergic reaction, fluid in the lungs, low unstable blood pressure, swollen lips, high temperatures, an ear infection, slow heart rate, dehydration and a hernia in his abdomen as a result of previous surgery.

Throughout the antibody treatment, Jamie had testing which showed that he was clear of neuroblastoma. He returned to the US a few months later for follow up tests which were also found to be clear. The Inglis family moved back to York in the UK in 2010, and tried to get life back on an even keel for Jamie and his little sister Poppy.

However, in March 2012, Jamie became unwell which was initially thought to be due to a chest infection. After suffering acute back pain for a week and following four visits to hospital, Jamie suddenly lost the use of his legs and bladder. An MRI scan immediately identified a 2.5cm tumour on his spine that had affected his bladder function and ability to walk. Jamie was rushed into emergency surgery the same afternoon, and doctors successfully removed the tumour. The neuroblastoma had come back.

Jamie spent over a week recovering and is now having physiotherapy to learn how to walk again. Tests following the surgery gave the Inglis family hope – Jamie does not have any neuroblastoma in his bone marrow and the MIBG scan is clear. There is a suspicious lesion on one of his ribs that requires further investigation.

As we do not have any relapse protocols in the UK, John and Vicky plan to take Jamie to Germany for a Haploidentical Stem Cell transplant. A recent conference held in Tubingen has shown very promising results for this treatment.

This treatment will not be funded by the NHS which is why Jamie needs your help. The therapy Jamie requires is likely to cost around £250,000. If you can help, please make a donation to the Neuroblastoma Alliance UK, or organise a fundraising event to raise money for Jamie's Appeal. Please give as much as you can afford to help save Jamie and other children like him. Every donation, no matter how small, helps.

John and Vicky said, "Jamie will be seven in August. He is a brave, happy boy who loves school and his little sister Poppy. He deserves the best chance of a full and long life. Please help us to give him that chance and the hope that he can beat this again.”

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

My gallery 1

My Teams

My company

My charity

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 55

All the best Jamie xxx

Donation by michael nolan on 08/08/12

£50.00

+ £12.50 Gift Aid

Money raised and donated by Richie, Karen and Sharon Busby

Donation by Justin Carr on 03/08/12

£192.00

+ £48.00 Gift Aid

Sponsor Money - Vicky Dover Wishing you all the best Jamie. xx

Donation by Vicky Dover on 27/07/12

£80.00

+ £20.00 Gift Aid

sponsor money vicky prince

Donation by vicky prince on 12/07/12

£95.00

+ £23.75 Gift Aid

Donation by Michelle marsden on 09/07/12

£50.00

+ £12.50 Gift Aid

Donated by Lisa Mac

Donation by Justin Carr on 03/07/12

£5.00

+ £1.25 Gift Aid

Congratulations Vicky Dover on your stay, wish I could have been there too........if only to scare you a little more...... Well Done neice.

Donation by Ann Taylor on 03/07/12

£20.00

+ £5.00 Gift Aid

ThIs is mine and Lills sponsor money from are night spent at woodchester mancion xxxx

Donation by Cara Langstaff on 02/07/12

£75.00

+ £18.75 Gift Aid

This is my sponsor money from my night in woodchester mansion x

Donation by karen bayfield on 30/06/12

£10.00

+ £2.50 Gift Aid

Donation by Justin Carr on 26/06/12

£5.00

+ £1.25 Gift Aid

Donation by Justine Morton

Donation by Justin Carr on 22/06/12

£5.00

+ £1.25 Gift Aid

Donation by Geoff Fowkes

Donation by Justin Carr on 22/06/12

£5.00

+ £1.25 Gift Aid

Donation by Paul Alderson

Donation by Justin Carr on 22/06/12

£5.00

+ £1.25 Gift Aid

Donation by Elaine Blackmore

Donation by Justin Carr on 22/06/12

£5.00

+ £1.25 Gift Aid

My sponsorship money, thanks everyone! Good Luck Jamie, Love Aunty Shelley xxx

Donation by Michelle Scott on 22/06/12

£350.00

+ £87.50 Gift Aid

My sponsorship, Penny

Donation by penny garner on 20/06/12

£30.00

+ £7.50 Gift Aid

Well done Vicky -such a good cause too xx

Donation by Sarah & Gary Bray on 20/06/12

Donation by James Lewis