My story

Myositis affects thousands of people in the UK, young and old. It can be life threatening, and almost always disabling. However, it is still relatively rare and does not attract the funding that more common illnesses do.

The Myositis Support Group is the only UK Charity that concentrates on this crippling condition, providing support for sufferers, and funding for research. The Group has already donated many thousands of pounds for research projects, but this only scratches the surface of the problem. We need to do more – there is still no cure, and in many cases no treatment either.

By donating to the group you can be assured that your money will go where it is needed; this is a small charity which spends only a minimum on administration. Your money goes to where it is needed the most - research and support.

I am inspired by an amazing family living with the effects of Myositis, they never complain. Furthermore they give so much back to the community in which they live.

Please give what you can to fund more research and help amazing people.

Thank you

My updates 5

It was a truly amazing day, fantastic support and incredible atmosphere. I am delighted with my time of 4.36.08 hrs. 2 blisters and 1 very happy lady!

23/04/12 17:41

It was a truly amazing day, fantastic support and incredible atmosphere. I am delighted with my time of 4.36.08 hrs. 2 blisters and 1 very happy lady!

23/04/12 17:41

My running log Oct 2011-April 2012! 98 runs, 99 hours = 560 miles!

16/04/12 12:17

My vest number is (red) 43734

16/04/12 10:47

Less than a week to go and i am so excited! The training has been long, exhausting and at times frustrating but i have gained and learnt such alot. I am truly humbled by the lovely messages and the volume of money raised for this great support group.

16/04/12 10:46

My charity

Myositis Support Group

Myositis Support Group

Charity Registration No. 327791

The Myositis Support Group is a UK charity providing advice and support to sufferers of Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis and their families. The MSG also funds and promotes medical research that improves diagnosis, treatment, management and understanding of these diseases.

Donations 114

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Well Done

Donation by Julie Hill on 18/06/12

£10.00

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From me and all of my friends x

Donation by Pat Tolley on 11/05/12

£100.00

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Well done

Donation by Mr Rumbold on 01/05/12

£25.00

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All of the Myositis sufferers will thank you for your tremendous effort. Well Done

Donation by Brenda Bleach on 01/05/12

£25.00

+ £6.25 Gift Aid

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Well done

Donation by The Myers Family on 01/05/12

£10.00

+ £2.50 Gift Aid

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well done

Donation by The Melsons on 01/05/12

£10.00

+ £2.50 Gift Aid

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Well Done Sarah

Donation by Eric & Sheena on 29/04/12

£20.00

+ £5.00 Gift Aid

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Well done Sarah for a fab time and raising so much money for such a good cause, you've done brilliantly.

Donation by Natalie Harmer on 25/04/12

£5.00

+ £1.25 Gift Aid

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Congratulations sarah very well done. best wishes the dunlop sinclairs.

Donation by sarah Dunlop- Sinclair on 25/04/12

£30.00

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Congratulations, great time and lots of fund raising, hope you're recovering.

Donation by Mike Murray on 24/04/12

£10.00

+ £2.50 Gift Aid

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Congratulations Sarah and well done for all your fundraising efforts.

Donation by Pam Gough on 24/04/12

£20.00

+ £5.00 Gift Aid

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Well done Sarah.

Donation by Alan Gough on 23/04/12

£25.00

+ £6.25 Gift Aid

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I knew I would get around to it eventually ! WELL DONE you x

Donation by Hazel Salter on 22/04/12

£10.00

+ £2.50 Gift Aid

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Dont know about Super Woman, your MAD Woman! Sincerely hope all went well, look forward to celebrating with you soon. love Zoe

Donation by Zoe Dolding on 22/04/12

£10.00

+ £2.50 Gift Aid

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Well done Sarah lots of love from the barriballs

Donation by Caroline Barriball on 22/04/12

£20.00

+ £5.00 Gift Aid

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Hope it went well,Sarah. Love from The Speddings

Donation by Dorothy Speddings on 22/04/12

£20.00

+ £5.00 Gift Aid

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All the best Sarah, Anna Kassim & Family 3rd Kenley Brownies

Donation by Kassim Family on 22/04/12

£20.00

+ £5.00 Gift Aid

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Have a great run Sarah! Best Wishes Sophie Austin and family

Donation by Yvette Austin on 22/04/12

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Well done Sarah! You're inspirational!

Donation by Salma Hussain on 22/04/12

£20.00

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Good luck. You can do it. Enjoy the day.

Donation by Sharon, Paul & the kids on 22/04/12

£26.20

+ £6.55 Gift Aid

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Good luck it's not a race ! Just finish and enjoy the experience x

Donation by Louise Blackhurst on 21/04/12

£5.00

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Enjoy!

Donation by Caroline Jones on 21/04/12

£5.00

+ £1.25 Gift Aid

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Good Luck Sarah - hope you have a great run!! Love from all the Webbers xxx

Donation by Gill Webber on 21/04/12

£20.00

+ £5.00 Gift Aid

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Good luck Sarah, just focus on that glass of wine at the end! Julie and Andy Webster xx

Donation by Julie Webster on 21/04/12

£10.00

Donation by Anonymous on 21/04/12

£150.00

+ £37.50 Gift Aid

Donation summary

  • * Online donations£2,593.40
  • Offline donations£265.00
  • Text donations£0.00
  • Total raised£2,858.40
  • Gift Aid£526.80

* Charities pay a small fee for our service. Find out how much it is and what we do for it.