Sarah's Nuclear rush (Muddy obstacle running race) page

Sarah Kiedish is raising money for Tree of Hope
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Nuclear rush (Muddy obstacle running race) · 11 May 2014

All donations are paid into Tree of Hope's general funds which fund our charitable activities. Our charitable activities are focused on raising & managing funds for medical treatment, therapy & equipment for sick & disabled children. England & Wales 1149254 Scotland SCO4261 www.treeofhope.org.uk

Story

Thanks for taking the time to visit my JustGiving page.

Our lovely godson Tristan was born with cerebal palsy and this surgery would help him tremendously. Selective Dorsal Rhizotomy (SDR) is surgery on the spinal column where the nerves stopping the messages getting from the brain can be identified and isolated. They then simply cut them, releasing almost all the stiffness (keeping some so the child can still stand up!). Intensive physio follows to teach those formally stiff, but actually quite weak, muscles to work in the right way. Tristan's CP causes his groin muscle to be constantly 'on' meaning it is hard for him to walk correctly. He can use a kaye-walker (kind of like a backwards zimmer-frame!) but he struggles due him having to concentrate on relaxing his legs to move in a stepping motion, and remembering to keep his core muscles strong to hold him up. SDR is not a magic cure, but it will give him increased freedom of movement and therefore the opportunity to learn to walk. If it simply helps him learn to dress himself or get on and off the loo it will be wonderful and worth it. We heard recently that the NHS are no longer funding this operation so we are having to raise the money and go privately.

Thank you for your help with our fundraising : ) x x

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Donation summary

Total
£615.00
+ £126.25 Gift Aid
Online
£615.00
Offline
£0.00

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