My story

 

Thanks for taking the time to visit my JustGiving page. 

Marcus is my inspiration...

My son Marcus was a happy boy. He always had a smile to offer people he met and it was easy to fall in love with his warm, generous character. He was advanced for his age and I think this maturity was to be our saving grace in the years that followed.

Marcus had always been healthy baby and as a toddler he avoided the viruses that circulated the playgroups. However, in the latter part of 2002, Marcus started to complain of stomach pains and his appetite disappeared. Marcus

After three hospital visits, five doctors appointments and 12 weeks of misdiagnosis, Marcus was finally diagnosed with neuroblastoma, a rare and aggressive form of childhood cancer. He was just three years old.

We had absolutely no idea what neuroblastoma was or what the impact of living with this disease would be. But we soon found out. Marcus was immediately admitted into hospital and put on a course of chemotherapy. It felt as though we had walked into our worst nightmare.

The months to follow were a continuous series of tests, tubes and treatments. Marcus had stage 4 neuroblastoma. The cancer had spread throughout his body and had formed several secondary tumours throughout his bones.

The treatment was intensive and the effects were harsh but Marcus stayed positive. I explained the cancer to him in simple terms, as bad cells which the chemotherapy was working hard to get rid of. I assured him that what he was going through was just one of life’s lessons that he had to learn to make him the strongest, best person he could possibly be.

After months of tube feeding and medicines Marcus seemed to be getting better, he gained a little bit of weight and strength.

Sasha and her young son MarcusThis gave us a renewed sense of hope and a small glimmer of light at the end of a seemingly long, dark tunnel.

However the ups and downs were extreme and we would spend the majority of our time in hospital fighting to keep Marcus well. His immune system was so low due to the chemotherapy that his body couldn’t even cope with a common cold. A regular virus would put him into critical care and onto life support. Still, I believed that Marcus would recover and we would be able to put this nightmare behind us.

The months turned into years as we attempted all possible treatments to keep Marcus alive, although the original tumour shrunk, the secondary tumours remained and the outlook became bleak. Eventually, he went into palliative care and was given weeks to live. Marcus died shortly after his 5th birthday.

Anybody would agree that it is unnatural for our children to die so early on in life, especially in such tragic and painful circumstances. 

The loss of Marcus has left a massive hole in my heart, one that cannot be filled, but with the help of the incredible work of Sparks and their fight to find safer and more effective treatments for neuroblastoma, a part of me is able to find some peace of mind and much-needed comfort. I will continue to help Sparks find a cure and fundraising to make medical research possible is, in my opinion, the only way to save our children and their families from the devastation we experienced. Please help us to find a cure...

Your donations are vital towards finding a cure, so let's work together to put an end to the unnecessary suffering caused to the lives of our children and their families.

Donating through JustGiving is simple, fast and totally secure and your details are safe. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, and the charities spend less. 

So please dig deep and donate now - Help Us Find A Cure!

My charity

SPARKS

SPARKS

Charity Registration No. 1003825 (England & Wales), SCO39482 (Scotland)

We fund life-saving medical research into conditions affecting babies, children and mums-to-be. We aim to improve the quality of life for children and families affected by serious illness or disability today, whilst seeking ways to better diagnose, treat and prevent these conditions in the future.

Donations 37

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A massive thank you to Yvonne Saunders for all of her hard work and fundraising efforts!

Donation by Sasha Field on 15/05/12

£55.32

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Good luck

Donation by Vincent Craignou on 25/03/12

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Good luck Simone, Keep training!

Donation by Joanna Woolf on 16/03/12

£20.00

+ £5.00 Gift Aid

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What an inspiration you are!

Donation by Heather DeGarmo Shaw on 15/03/12

£50.00

+ £12.50 Gift Aid

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People like you are SUPER STARS!!! Good Luck

Donation by Diana on 15/03/12

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Good Luck

Donation by Angelina on 13/03/12

£10.00

+ £2.50 Gift Aid

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Go Simone, go :)

Donation by Juliana Barale on 11/03/12

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Hey Simone - what a great cause! I know you can do it. Good luck on your adventure to Paris. Anna

Donation by Anonymous on 10/03/12

£10.00

+ £2.50 Gift Aid

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Donation by dacre bracey on 09/03/12

£100.00

+ £25.00 Gift Aid

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Good luck - Jennifer Wilson VA Sheffield Broadfield Park

Donation by jennifer wilson on 08/03/12

£5.00

+ £1.25 Gift Aid

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All the best. Celine from VA Chiswick Park

Donation by Celine Bichot on 05/03/12

£5.00

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Good luck!

Donation by nicola seeney on 04/03/12

£10.00

+ £2.50 Gift Aid

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Good Luck

Donation by Agron nuredini on 04/03/12

£10.00

+ £2.50 Gift Aid

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Donation by Wemerson NHill VA on 04/03/12

£10.00

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Good luck Simone!

Donation by Fredrik Charpentier on 03/03/12

£50.00

+ £12.50 Gift Aid

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Good luck!! -

Donation by Danielle Stratfull (VA Uxbridge) on 03/03/12

£2.50

+ £0.63 Gift Aid

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Good luck!!!

Donation by Sophie Mcarthur on 28/02/12

£50.00

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Good luck and God bless! :-)

Donation by Tricia Hemans on 23/02/12

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good luck simone

Donation by Sarah Tuke on 22/02/12

£20.00

+ £5.00 Gift Aid

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Donation by Anonymous on 21/02/12

£10.00

+ £2.50 Gift Aid

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Sorry it's only £5, but wanted to give something and acknowledge a truly wonderful cause, Love from Scott, lu, Ella & Marlo x

Donation by Scott Cridland-Smith on 21/02/12

£5.00

+ £1.25 Gift Aid

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Good luck Simone! Best, Norien, Dafe & Donya

Donation by Donya Rose on 21/02/12

£25.00

+ £6.25 Gift Aid

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Best of luck Simone!

Donation by Yvonne & Radovan Radman on 21/02/12

£100.00

+ £25.00 Gift Aid

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Good luck Simone!

Donation by Anonymous on 20/02/12

£50.00

+ £12.50 Gift Aid

Donation by Rebecca Johnsey on 20/02/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£1,154.21
  • Offline donations£847.97
  • Text donations£0.00
  • Total raised£2,002.18
  • Gift Aid£147.55

* Charities pay a small fee for our service. Find out how much it is and what we do for it.