My father lost his battle to MND on the 12th of March 2020 after 3 years and 5 months from his first symptoms (6 days before the UK went into lockdown and the world changed).  He is and will always been an inspiration in my life.  My father was a strong and patient man that had time for everyone and touched many peoples lives.   Even in illness he had a great sense of humour and those that got to know him learnt that.  

During his battle with MND he never complained, he often refused to take his pain medications because he felt more alive.  

From personal experience the condition also has a heavy toll on those that support and care for a loved one with MND.  MND needs more research and I hope to raise money by walking (an activity I started during lockdown) to raise money for Motor Neuron Disease Association (MNDA) so that others with MND and their families can benefit from research and support into the condition. 

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