Story

Thank you and welcome! Thanks for taking the time to visit my JustGiving page. Welcome to the MAD South West Coastal Path Walk Page for Simon Gwynne, part of  Team Octavia, raising money for the Momentum Campaign for the SMA Trust.   The Challenge - the MAD SW Coastal  Path Walk – all 630 Miles   One man, five friends and a dog are setting out to conquer the 630 mile walk around the South West Coast - Minehead to Poole. We reckon it will take somewhere between 40 to 50 days to complete. The team comprises Osborne the dog, myself and: Tim Woodward Sarah Brown Andrew Hartley Adam Moorhouse Andrew Stone   For more general information on other Team Octavia challenges, please also see the MAD Challenge Summary Page on <a href="http://www.justgiving.com/Team-Octavia">http://www.justgiving.com/Team-Octavia</a>.    What is The SMA Trust?   The SMA Trust is the only charity in the UK dedicated to raising funds for research into Spinal Muscular Atrophy (SMA). SMA is the leading genetic killer of toddlers and babies. SMA affects the motor neurons in the spinal cord, causing muscular weakness, severe disability and premature death. 50% of the most severely diagnosed cases result in death by the age of two. 1 in every 40 people carries the gene that causes this disease (around 1.5million people in the UK).   What is the momentum Campaign?   The charity has launched an appeal, the momentum Campaign, to raise £2million for more research into SMA. Researchers believe they are tantalisingly close to finding affective treatments. There has been some considerable progress in research into SMA around the world in recent years and the charity wants to build on, and maintain, that momentum. SMA is currently incurable and untreatable. Research is hope for families affected by this disease.   How are we raising money?   As part of The MAD! Challenge ((Momentum ADventure World Challenge) we are trying to raise £1 million this year for The SMA Trust's Momentum Campaign. Children with SMA are undertaking challenges and then challenging their team members to undertake their own challenges.   What can you do?   We’d love to hear from anyone who wants to carry out their own challenge for Team Octavia, whether physical or not. All you have to do is think of an idea, set a date/s and get as many people to sponsor you as possible.  If you are thinking of doing a challenge then please contact Lucy Blyth at The SMA Trust (lucy@smatrust.org) and she will send you all the information you need.   Or?   If this does not appeal,  then please sponsor me or any of those listed above participating in the South West Coastal Path Walk challenge outlined above or, indeed, any of the challenges listed on the MAD Challenge Summary Page referred to above (<a href="http://www.justgiving.com/Team-Octavia">http://www.justgiving.com/Team-Octavia</a>). Large donations are always welcome (!), but every pound makes a difference, so no amount is too small. All challenges are self funded and ALL contributions will go directly to the SMA Trust and hence to funding research. <a></a><a></a><a></a><a></a><a></a><a></a>Team.     To donate, you can  donate through JustGiving - it is simple, fast and secure. However, if  you do not wish to use the internet then please send cheques payable to The SMA Trust, Compton Scorpion, Shipston on Stour, Warwickshire CV36 4PJ. When sending a cheque it would be fantastic if you could mention in the cover letter (or on the reverse of the cheque) which MAD Challenge (eg Team Octavia - SW Coastal Path Walk) you would like your donantion to sponsor.. <a></a>    Any which way you choose to do it,  please dig as deep as you can and donate now! Thank you for taking the time to read through this page.   Best wishes   Simon

Simon's page

Simon's page

Story

Donation summary