My story

Thanks for taking the time to visit my JustGiving page.

This year I will be running in (trying to get round!) the Brighton 2012 Marathon, for a wonderful local charity called Amaze. I chose Amaze as they are a great Brighton & Hove charity and are used by the family of an equally amazing little girl that I know...

Thalia has Kabuki Syndrome, which means that she and her family have to cope with lots of challenges surrounding her condition, and many of the little things that lots of us take for granted can become very difficult to manage. Luckily, Thalia has an incredible family who deal with everything that comes their way, they have invaluable support from Amaze, and Thalia herself lives her life with a smile and a laugh and a truly amazing, humbling determination.

If you'd like to learn more about Kabuki Syndrome then please do take a little time to visit these links (the second one was set up by Thalia's mum, aiming to connect families worldwide):  

http://kabukisyndrome.com/

http://kabukisyndrome.freeforums.org/

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So please dig deep and donate now.

Thanks, Simon.

My updates 1

I completed the Brighton Marathon in a time of 4:28. Thank you SO MUCH everyone for your donations - together so far we have raised £460 + £100 gift aid, plus I have an employers contribution to add to that. FANTASTIC! Thanks again from Simon, Thalia & The Staiano's, and Amaze.

18/04/12 11:21

My charity

Amaze

Amaze

Charity Registration No. 1078094

Amaze is a charity that supports parents of children with special needs and disabilities in Brighton and Hove. It offers a helpline, volunteers who work individually with parents on education issues and benefits claims, publications, workshops and much more. 'I think that the service that Amaze offers is outstanding and I would have been lost without it.'

Donations 30

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Lots of Love from Jenny and Tom Clark x

Donation by Gemma Staiano on 25/04/12

£20.00

+ £5.00 Gift Aid

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HPSSC Chairty Money Match

Donation by Sheila Milsted on 25/04/12

£150.00

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Simon - well done - all that hard training paid off. Good luck for next year! Sarah

Donation by Sarah Lobo on 18/04/12

£10.00

+ £2.50 Gift Aid

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BRAVO Simon!! x

Donation by estelle richard on 18/04/12

£10.00

+ £2.50 Gift Aid

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Well done Simon! X

Donation by Lucy Mackie on 16/04/12

£10.00

+ £2.50 Gift Aid

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Good luck!

Donation by Rachael Baker-Searle on 09/04/12

£10.00

+ £2.50 Gift Aid

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Good Luck Simon! Running a marathon is incredible! I hope it goes well.x

Donation by Maeve Lucas on 09/04/12

£5.00

+ £1.25 Gift Aid

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Good Luck Si From the Northern Chapter! Math, Sarah & Lucas xxx

Donation by Matthew Metcalfe on 23/03/12

£20.00

+ £5.00 Gift Aid

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For Thalia !!!!! Good luck

Donation by jacomina baatje on 08/02/12

£10.00

+ £2.50 Gift Aid

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Good luck Simon, lovely gesture for Thalia and the charity

Donation by Chris Lucas on 07/02/12

£10.00

+ £2.50 Gift Aid

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Go Simon Go! XX

Donation by Hanna Jackson on 05/02/12

£25.00

+ £6.25 Gift Aid

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You Rock X

Donation by Thalia Maia Staiano on 03/02/12

£25.00

+ £6.25 Gift Aid

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What I Meant to say was that Paul and I think you are amazing - thank you!! Can't wait to cheer you on & celebrate all your hard work!!! X

Donation by Gem & Paul Staiano on 03/02/12

£25.00

+ £6.25 Gift Aid

Donation by Gemma Staiano on 03/02/12

£25.00

+ £6.25 Gift Aid

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Dear Sunny & Dollys Daddy Thank You for doing this for my Lil Sister We think you are fab Lots of Love Maisie Valentina xxx

Donation by Maisie Valentina Staiano on 03/02/12

£25.00

+ £6.25 Gift Aid

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Good Luck Simon! :-) Great cause for an amazing family and beautiful little girl! Xxx

Donation by Beth Cohen on 02/02/12

£10.00

+ £2.50 Gift Aid

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Thank you so much for doing the Marathon and helping children like Thalia, who is our Great Grandaughter. Many thanks Great Nanny & Grandad Stevens

Donation by Josie Stevens on 29/01/12

£20.00

+ £5.00 Gift Aid

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As Thalia is my Great Niece, you don't know how much I appreciate what you are doing

Donation by Debra Hilton on 29/01/12

£10.00

+ £2.50 Gift Aid

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Good luck to you Love Sarah and Kirsty

Donation by Sarah Metcalfe on 15/01/12

£10.00

+ £2.50 Gift Aid

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Best of luck Simon!! What a brilliant charity to run for. Well done you! X

Donation by Rachel Jay on 13/01/12

£5.00

+ £1.25 Gift Aid

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Good luck Si. Great cause. Gutted we won't be able to cheer you, but will be thinking of you on day :-) x

Donation by Sara Merat on 12/01/12

£10.00

+ £2.50 Gift Aid

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Well done Simon, what a lovely thing to do. All our love to the Staiano's. Tx

Donation by Thomas Ioannou on 12/01/12

£50.00

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Good luck. I know Thalia & she is a happy determind & beautiful lucky to have the parents she does. A lot of credit is down to you Gem. Love Fi x

Donation by Fiona Beard on 12/01/12

£5.00

+ £1.25 Gift Aid

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Good Luck!!!! Thalia is gorgeous and I think what you're doing is amazing :-)

Donation by Sharon Pannett on 11/01/12

£50.00

+ £12.50 Gift Aid

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Good luck Si!

Donation by Lyndon Roberts on 11/01/12

£5.00

+ £1.25 Gift Aid

Donation summary

  • * Online donations£650.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£650.00
  • Gift Aid£110.00

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