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Steve's page

Steve Mccarthy is raising money for Reverse Rett
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Virgin London Marathon 2016 · 24 April 2016 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Thanks for taking the time to visit my JustGiving page.

As you may know I managed to get one of twelve spaces in the ballot for the London marathon as a non elite wheelchair user (I shall be completing the course in my standard day chair).

I have decided to raise money for Reverse Rett in aid of Lily (Hope for Lily on Facebook).  Reverse rett is a charity which works to speed treatments and find a cure for Rett Syndrome.

Rett Syndrome is a neurological or brain disorder which most often affects apparently healthy little girls around the age of 6-18 months.  Onset can be sudden or more subtle.  The condition usually follows a path of progression, where skills such as speech, hand use and mobility are lost. Most girls do not speak at all. Some have a few words. Some are left with some hand use. Some girls never walk, some girls learn to walk and lose it later and a few keep walking. There is no way to predict the severity of these different symptoms.

Thank you for any donation you have made!

Steve

Donation summary

Total
£1,825.56
+ £316.50 Gift Aid
Online
£1,825.56
Offline
£0.00

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