I will be running the Endurancelife South Devon Coastal Ultra Marathon to help raise money and awareness for the SMA Trust and specifically Team Rowan in loving memory of the beautiful Rowan, who sadly lost her battle with SMA in 2012. Since then Team Rowan have raised over £80k for The SMA Trust helping to fund further research and projects to find a cure and treatments to combat this disease, read their story here:

https://www.justgiving.com/teams/teamrowan

SMA is an inherited, genetic neuromuscular disease which affects the nerves responsible for muscular function. It is the leading genetic cause of death of infants and toddlers with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with less severe forms of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function. Between 1 in 40 to 60 people is an SMA carrier, equating to approximately 1.6 million people in the UK.

The SMA Trust is actively funding and driving research in an attempt to ultimately find a cure and are leading the way in enhancing quality of life for anyone suffering from SMA.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.