Steven is a Nigerian, 5-year-old boy living in England who was diagnosed with a bone condition called Osteogenesis Imperfecta (Brittle Bone Disease).  He was born with several fractures in both legs and arms.  For several weeks, his parents could not understand why their bundle of joy was more of a bundle of agonised crying.  This was because neither the doctors nor his parents knew about his condition or the fractures.

They finally found out about these several weeks after birth.  At this point in time, the bones had already started healing but were overlapping.  This means that at 5 years of age, Steven is still unable to walk unaided.

In his short lifetime he has had several fractures of which we have lost count of number. He has had surgery on both legs in March and August 2008 and the doctors say Steven will still need more operations @ £18,610 for both legs.

At the moment Steven needs constant physiotherapy @ £3,640 per yr @ £70 per week and pamitronate injections to keep the bones together and strong. The pamitronate injection would be administered every three months @ £2,750  four times a year, for the next ten (10) years to strengthen his bones, hence, reducing the number of fractures.  So far he has only had one of these injections on the 21^st May 09. 

Steven cannot have these treatments on the NHS because he is not a British Citizen and  he is not entitled to public fund.

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