Steve Thornley's Iron Man Bolton Page

Claire Wright is raising money for The Lily Foundation
Donations cannot currently be made to this page

Iron Man Bolton · 16 July 2017

The Lily FoundationVerified by JustGiving
RCN 1122071
The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Story

On the 16th July Steve will be completing his first full Iron Man which consists  of a 2.4-mile (3.86 km) swim, a 112-mile (180.25 km) bicycle ride and a marathon 26.22-mile (42.20 km) run, raced in that order and without a break.

You may think him a little crazy but this is another amazing challenge  he is completing to help the Lily Foundation support families affected by mitochondrial disease and find a cure - all in memory of Jacob Wright who lost his fight aged 16 months. This cruel debilitating condition took so much from Jacob, It primarily affected his brain, killing his brain cells , taking away his ability to hold up his own head, hold his toys, his laugh, his smile and ultimately his life.

Every 20 minutes a child is born who will develop symptoms by the age of 16 - in addition young adults and adults can develop symptoms later in life. Seizures, strokes, blindness, hearing loss and reduced mobility are just some of the symptoms. Yet there are very few treatments and no cure.

Steve is pushing himself to stop it taking precious  lives - the amazing DrS and reasearchers are getting closer but not close enough - and by supporting Steve with a small donation we will get there faster.

For Jacob and all those affected please help Steve make a difference

Thank you 

Help Claire Wright

Sharing this cause with your network could help raise up to 5x more in donations. Select a platform to make it happen:

You can also help by sharing this link on:

Donation summary

Total
£475.00
+ £72.43 Gift Aid
Online
£475.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees