Thanks for taking the time to visit my JustGiving page.
For those of you whom aren’t aware my son has a condition called Phenyketonuria also know as PKU. Left untreated children with PKU become retarded. Since the condition was discovered in the 1950’s children born with PKU are treated by adapting a Low Protein diet and a considerable amount of medication. It is an extremely strict diet whereby most food is provided by prescription only. Along with this can be several other factors that can affect a child’s life and can be very restricting. We as a family right from the very beginning of our family life have been supported by the PKU society and the many members. They are a registered charity and help children and families understand the best ways to cope with the life changing diagnosis. They also run regular conferences where experts and families meet up. Our first conference was an emotional experience where we were faced with the reality at meeting some severely disabled adults who had never had the diagnosis or treatment that other families have been able to have.
We are feel very lucky to have son who copes as well as he does, but it could have been a very different story. We ask that you give generously with the thought in mind your money will help further research and families to ensure that any child born with the condition will live as full a life as possible.
With much thanks to any help however small you are able to give.
Stew
