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Charlotte's page

Charlotte Cale is raising money for NSPKU
Celebrating the birthday of Stewart's 40th Birthday

on 31 October 2011

Donations cannot currently be made to this page
Exists to help & support people with PKU, their families & carers. It works closely with medical professionals in the UK. It receives no government funding & is dependent on the generosity of its members & the public to fund practical support, raising awareness & research into the condition.

Story

<p>Thanks for taking the time to visit my JustGiving page.</p> <p>&nbsp;</p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">For those of you whom aren&rsquo;t aware my son has a condition called Phenyketonuria also know as PKU.<span style="mso-spacerun: yes;">&nbsp; </span>Left untreated children with PKU become retarded. Since the condition was discovered in the 1950&rsquo;s children born with PKU are treated by adapting a Low Protein diet and a considerable amount of medication. It is an extremely strict diet whereby most food is provided by prescription only.<span style="mso-spacerun: yes;">&nbsp; </span>Along with this can be several other factors that can affect a child&rsquo;s life and can be very restricting.<span style="mso-spacerun: yes;">&nbsp; </span>We as a family right from the very beginning of our family life have been supported by the PKU society and the many members.<span style="mso-spacerun: yes;">&nbsp; </span>They are a registered charity and help children and families understand the best ways to cope with the life changing diagnosis.<span style="mso-spacerun: yes;">&nbsp; </span>They also run regular conferences where experts and families meet up.<span style="mso-spacerun: yes;">&nbsp; </span>Our first conference was an emotional experience where we were faced with the reality at meeting some severely disabled adults who had never had the diagnosis or treatment that other families have been able to have.</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">&nbsp;</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">We are feel very lucky to have son who copes as well as he does, but it could have been a very different story.<span style="mso-spacerun: yes;">&nbsp; </span>We ask that you give generously with the thought in mind your money will help further research and families to ensure that any child born with the condition will live as full a life as possible.</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">&nbsp;</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">&nbsp;</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">With much thanks to any help however small you are able to give.</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">&nbsp;</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">&nbsp;</span></p> <p class="MsoNormal" style="text-indent: 36pt; margin: 0cm 0cm 0pt 36pt;"><span style="font-family: Times New Roman; font-size: small;">Stew</span></p> <p>&nbsp;</p>

Donation summary

Total
£430.00
+ £93.75 Gift Aid
Online
£430.00
Offline
£0.00

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