Story
I lost my daughter Rebecca to Cystic Fibrosis on 10th June 2009, she was aged 27 years 7 months and two days. She was my world and i miss her so much and even though it's nearly 5 years since she passed away, it still hurts every day. Since losing her i have needed a focus so along with my husband and close family i have set up Becci's Find a Cure Memorial Fund and we raise money in Rebecca's memory in the hope we can help find a cure for CF.
Having lived with CF for over 27 years i can say at first hand how difficult it is and trying to stay positive waiting for a cure can sometimes be a nightmare. We thought we had a few more years left with Becci but devastatingly CF had other ideas. In September 2007 she was walking the Great North Run, see my pictures, the following May she was being referred for a lung transplant. In Feb 2009 she was turned down for transplant due to complications of the ilnness and 4 months later she passed away. It's an illness that is unpredictable and needs to be cured. Below is a bit of information about CF.
CF mainly affects the lungs and digestion but the continuous treatments required to keep the illness stable has a knock on effect to the liver, kidney's, bones and pancreas. There is no cure and although life expectancy is now 41 only 50% of sufferers will reach that age, each week two young lives will still be lost to it and five babies are born with it.
Rebecca dealt with her illness with grit, determination, courage and a never say die attitude. She never let it stop her doing the things she wanted to do in life and she also did a bit of fund raising herself, abeselling off the Humber Bridge and the great North Run twice and a sponsored swim in which she completed 100 lengths. She was my inspiration when she was here and she still is now.
I have decided to take on a challenge each June to mark Becci's anniversary and this year have chosen the the Great North Swim. I am being joined in this challenge by my good friend Maggie Jewitt who has shared many fund raising events with me over the last 15 years. Along with Maggie is her friend Emma Parsons who has very kindly agreed to take on the challenge and help us raise money for CF even though she never met Becci.
Please sponsor us and help raise some funds for CF towards better treatment and ultimately a cure. My aim in life is to try and stop other family's having to deal with the devastation losing a child brings to your life. I can't do anything medical but if i can help provide money to fund the wonderful scientists who work tirelessly to find a cure, i'll feel my lovely young courageous daughter won't have died in vain.
Thank you for taking the time to visit our page and show an interest in Cystic Fibrosis.
