I've just had my hair cut by a 10yr old to raise funds for the Cystinosis Foundation Uk! I've started uploading photos for you to see ( apparently I can only have 10 on here) and if you're lucky I'm hoping to find time to edit a video clip for you. Bear with me folks!

 My 'stylist' for the day has Cystinosis and has to take a massive amount of medication. She was diagnosed at 10 months old and each month takes delivery of bottles of medicine, tablets,capsules, drops and eye drops weighing over 12kg in total.  She has to have eye drops every two hours during the day to disolve the crystals that are forming in her eyes and she has Cystagon every 6 hours around the clock. As well as this she takes oral medicines including sodium bicarbonates, potassium chloride and various other tablets. That's her in the picture and no, she didn't use the shears! I just thought that might make a few of you smile ;-)

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now, this will of course guarantee you my everlasting love 'n' hugs. Sue xxxxxx

 Thank you SO much to everyone who has sponsored me, you've been very generous and I love you all.   My hair actually looks rather fab, she's done a great job. SOME photos will appear later.

Suze

xxxxx