Susans' page
£735.00 raised of £600.00 target
43 donations
My Target:
£600.00
£735.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/Susan-Smithcrazylady
By mobile internet Scan this code on your smartphone to go straight to Susan Smith's page.
By text message to donate £10 Text QJWD59 £10
to 70070
My story
I've just had my hair cut by a 10yr old to raise funds for the Cystinosis Foundation Uk! I've started uploading photos for you to see ( apparently I can only have 10 on here) and if you're lucky I'm hoping to find time to edit a video clip for you. Bear with me folks!
My 'stylist' for the day has Cystinosis and has to take a massive amount of medication. She was diagnosed at 10 months old and each month takes delivery of bottles of medicine, tablets,capsules, drops and eye drops weighing over 12kg in total. She has to have eye drops every two hours during the day to disolve the crystals that are forming in her eyes and she has Cystagon every 6 hours around the clock. As well as this she takes oral medicines including sodium bicarbonates, potassium chloride and various other tablets. That's her in the picture and no, she didn't use the shears! I just thought that might make a few of you smile ;-)
For more details visit http://www.cystinosis.org.uk
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So please dig deep and donate now, this will of course guarantee you my everlasting love 'n' hugs. Sue xxxxxx
Thank you SO much to everyone who has sponsored me, you've been very generous and I love you all. My hair actually looks rather fab, she's done a great job. SOME photos will appear later.
Suze
xxxxx
My charity
Cystinosis Foundation UK
Charity Registration No. 1074885
TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL
Donations 43
Thankyou everyone! xxxxx Darcy tells me every day how lovely my hair looks!
Donation by Susan Smith on 29/02/12
Looks like Darcy has done a good job! Hope you raise lots.
Donation by Jane Pegg on 06/02/12
£10.00
+ £2.50 Gift Aid
Well done Sue. What a way to get a free hair cut. Glad to see you smashed your target. x
Donation by Paul Bird on 03/02/12
£10.00
+ £2.50 Gift Aid
Darcy, very best wishes and good luck.. I think David wanted a short back and sides too.
Donation by Richard Simmonite on 31/01/12
£20.00
+ £5.00 Gift Aid
Donation by Jo Kristine Pike on 30/01/12
£5.00
+ £1.25 Gift Aid
Very brave.. can't wait to see the new look on Tuesday!
Donation by Scott, Emma, Toby, Daniel, Alice Barnes on 27/01/12
£10.00
+ £2.50 Gift Aid
Good luck Susan! Hope Darcy doesn't scalp you!
Donation by Ethne & Tom (Darcy's Nanna and Granda) on 25/01/12
£30.00
+ £7.50 Gift Aid
well done and cant wait to see the pictures, from sue goulsbra and her family xoxox
Donation by sue goulsbras on 24/01/12
£20.00
hi susan, keep up the good work.proud of you. love cuz steve and gang.x
Donation by steven hughes on 24/01/12
£10.00
+ £2.50 Gift Aid
Simon & I are wishing you all the best! we are sure your new hair style will be fantastic! Waiting for Pictures!!xxx
Donation by Karolina Korf-Youlton on 24/01/12
£10.00
+ £2.50 Gift Aid
Good Luck Darcy x
Donation by raymond boyland on 24/01/12
£10.00
+ £2.50 Gift Aid
Well done on your efforts!
Donation by Maria Pekli on 24/01/12
I'm sure you'll look gorgeous Sue!
Donation by Julie Bullous on 23/01/12
£10.00
+ £2.50 Gift Aid
I hope this small donation helps you! From a cystinosis chick in Australia.
Donation by serena scott on 23/01/12
Great cause ! Well done xx
Donation by Damien Froehlich on 23/01/12
£5.00
+ £1.25 Gift Aid
Thank you for raising funds for Cystinosis, Good Luck xx
Donation by Kelly Chilvers on 23/01/12
£10.00
+ £2.50 Gift Aid
Well done Sue. Great cause. You will be really scary after this.
Donation by GRAHAM MARGETTS on 22/01/12
£50.00
+ £12.50 Gift Aid
Donation by Anonymous on 20/01/12
£10.00
+ £2.50 Gift Aid
Good Luck.
Donation by Anonymous. on 20/01/12
£10.00
+ £2.50 Gift Aid
Donation by John Wheelwright on 19/01/12
£20.00
+ £5.00 Gift Aid
Well done. You ARE a nutter!!!!
Donation by Gillian Buckley on 19/01/12
£10.00
+ £2.50 Gift Aid
Well done and Good luck. This is very sweet
Donation by shahrzad zargari on 17/01/12
£10.00
+ £2.50 Gift Aid
Donation by Julie Fieldsend on 15/01/12
Good luck xxx
Donation by Adam on 15/01/12
£20.00
You never know... You might just be about to start a new trend in haircuts!
Donation by Adam on 14/01/12
£50.00
+ £12.50 Gift Aid
Donation summary
- * Online donations£735.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£735.00
- Gift Aid£151.25
* Charities pay a small fee for our service. Find out how much it is and what we do for it.






