I have been through all the treatments, Caltar pasted on my scalp for over 24 hours twice a week, stingy little bottle of evil stuff every evening, brown bath gunk and not in the Spar mud bath type of way. Strict detoxing, weeks of no sugar or gluten. Errrg nothink worked but you could proberly smell mt new tar fragrance, hear my grumpyness from a mile off from my sugar carving and lack of sleep from my own itchy skin.  

Some readical light treatment that could have leaft me almost blind, if it wasn't for speical fashionable blacked out glasses with blinkers which I had to wear and yes I was in secondary school at the time.  I was so popular.

Adult level of light treatments which left me ill and off school for weeks, but I had a great tan. Two weeks in hospital at age 12 with horrible Hosptial food and homework. Yuck.

I still ended up 95% covered in at least four different types of Phorisis and surround by people who did not understand and was reluctant to lissen. Some how I still found the will power to get out there and not allow this to rule over me. I had to embrace this. 

As I got older medical understanding started to develop and therefore new Medications. YES there was hope after years of being leaft to live in my own skin.

I was lucky to get a great consultant who almost throw these new drugs at me and loved the challange. It wasn't easy, I got ill off one meds and I have discovered I have the ability to create an immunity to Biological drugs (of course I did) So my time maybe on a downward struggle to keep my skin under control and not run out of meds once again. But so far these Biological drugs have been the most responsive and at lest problematic, unless you hate kneedles that is.

I have two kids who will have a massive chance of carrying the guine. I will not allow them to hide and feel as bad as many of us with Phorisis had/do feel.

We need to increasing the awareness of this condition and feed some education on common skin disorders as phorisis is massively miss understood on so many levels.