Hello, thankyou for visiting my site

My good friend Octavia Woodward, who had the misfortune to be born with SMA (Spinal Muscular Atrophy) is not allowing her disability to get in the way of her challenge to raise £100,000 for the charity (The S.M.A. Trust).

 

Octavia (13) has just driven her pony and trap from Windsor (after competing in the Royal Windsor Horse Show) back to her home in Somerset.  She also issued the challenge to her friends to perform their own fund raising feats. I am so impressed with her efforts that I  am taking her up on her challenge by joining my Mother and my brother, William in a sponsored ride from Salisbury racecourse to Goodwood racecourse, between June 1^st and June 3^rd. - arriving at Goodwood one hour before the first race on their eve-of-The Derby evening meeting.  N.B. I will be supported by my trusty  polo pony, Maggie.

 

Spinal Muscular Atrophy (SMA) is currently untreatable and often fatal. SMA is the leading genetic killer of infants and toddlers. This deadly genetic defect results from a missing Survival Motor Neurone gene. As the motor neuron network deteriorates, the body loses the ability to send messages to control muscles which then waste away - eventually causing death. However, strong foundations have been laid by researchers for the development of clinical trials and treatment and now is the time to build, gain and maintain the momentum of this research. This appeal is not just for Octavia but also for the benefit of future generations who carry the gene that causes this cruel condition.

 

I think you will agree that this research could have life-changing and indeed life-saving consequences.

 

All contributions, large or small, will be greatly appreciated and will be acknowledged.

 Thank you,

Tatiana