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As a team we will be partaking in the Pedal, Paddle, Peak Triathlon in the Lake District on Saturday June 18th  (next week!) in aid of Muscular Dystrophy UK.

The task take approximately 9 hours and includes Pedaling ( 30miles in total) from Penrith along Lake Ullwaters, then Paddling 2 miles on Ullwaters Lake in a 4-man canoe before scaling the 950m Peak of Helvellyn Mountain, the third highest Peak in England. Finishing off with a pedal back to Penrith and over the finish line.

We are supporting Jed Thirklettle. Team JED was set up in 2010 in honour of our work colleagues Michael Thirkettle's son, Jed, who has Ullrich Congenital Muscular Dystrophy (UCMD).

In March 2008, when Jed was 8 years old he was diagnosed with UCMD which is a degenerative muscle-wasting disease that causes progressive muscle weakness, tightening and contractures in the muscles and limbs which leads to mobility and respiratory problems. Depending on the severity of the condition many children become wheelchair bound early teens with debilitating mobility restrictions in early adulthood. Jed is now 16 and his condition is progressive, though he is doing well, many are severely affected and there still remains no treatment or cure. it limits everything he can do physically, from walking, running and any sporting activity to the daily struggle of going up stairs. he is an amazing young man, whom despite the challenges he facing him in life lets nothing get in his way; his strength of character is awesome and is known through his circle of friends for always having a smile on his face. please visit the charity web page to see just how much support is needed.

http://www.musculardystrophyuk.org/get-involved/family-funds/funds/team-jed/

http://www.musculardystrophyuk.org/about-muscle-wasting-conditions/ullrich-congenital-muscular-dystrophy/

However, there is a cause for hope on the horizon. Clinical trials will now play a key part in the research and potential treatment of UCMD in Jed's lifetime (hopefully the next 12-24month). Research is the way forward and clinical trials hold the hopes for thousands suffering from the condition. With the huge steps forward in medical science the priority must be funding research to discover a cure, preventative treatment or even a way of slowing down the symptoms or delaying the muscle wasting timescale. Our fund raising is focused on providing research funds to support trials currently being implemented for new treatments and drugs.

All your donations and sponsorship will go direct to funding clinical trials and research for Muscular Dystrophy.

Thank you in advance for your donation, for supporting us as a team and Jed and his charity Muscular Dystrophy.

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