Charlotte  who is 3 and mum Claire have joined the My Mito Miles challenge, where every mile counts in the fight against mitochondrial diseases!

Charlotte try will walk or scoot 2 miles  and Claire will run a minimum of 12 miles a week. This is to help The Lily Foundation.to get around the World, a total of 24,901 miles, (40,074 km) to raise awareness and vital funds at this difficult time by Mitochondrial Disease awareness weekend in September.

We are doing this in memory of Jacob , Charlottes big brother who she never met but she knows who he is. 

She also knows that she is going to get a medal and she will be doing it to make other children happy.

The work The Lily foundation do is so important to families like ours. When Jacob died aged just 16 months in 2012, Liz and the charity were a glimpse of hope at such a dark time. We were supported so much and we embraced their mission to find a cure in Jacobs memory to let his legacy live on 

So please if you can donate to help us help them at this difficult time 

 Thank you so much for your support and donations.Thanks for making a difference.