I'm taking part in Swim Serpentine 2019 for The Lily Foundation.This 2 mile open water swimming event is the largest open water mass participation event in the UK.It is going to be a challenge but nothing compared to the challenges the children effected by Mito face every day,  children like my son Jacob.

Born healthy and happy we thought we had forever with our gorgeous boy. But  on 20th September 2011 aged 9 months he started having seizures. These seizures were uncontrollable and he started to loose all his skills. His ability to reach out, hold his head up and his very special smile. 

At 14 months old we were told he had Mitochondrial Disease, a genetic condition with no treatment or cure and it was unlikely he would see his second birthday. The disease was destroying his brain and eventually it would stop working.

He died just 2 months later. Our hearts were broken forever and we miss him more than I can put into words but as a family, we are determined to change the story for others.

10 million people in the UK suffer from diseases in which mitochondrial dysfunction is believed to be involved, while every day in the UK a baby is born who will develop mitochondrial disease. The disease is debilitating, there is no cure and lives are cut far too short. The Lily Foundation's ultimate aim is to one day find a cure for mito. The charities mission is to support people whose lives are affected by the condition, raise awareness and fund research into its prevention, diagnosis and treatment. Please donate if you can and together we will make a difference.

Thank You